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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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07-10-2016, 10:13 PM | #1 | ||
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Grand Magnate
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Don't apologize! I meant it for everyone! I just know that some MGers are really doing poorly. This disease is hard on all of us, no matter what condition we're in at the moment.
I'm just grateful that there are people out there working on better meds for us! Annie |
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07-14-2016, 06:59 PM | #2 | ||
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Junior Member
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I wonder for us Canadians if we'll have a chance to try it out, I'd be interested since RITUXAN doesn't seem to be doing much so far I've had 2 infusions of 1000mg each the last one being May 10th with no improvement in my conditions I still require a weekly PlasmaPherisis and taking a bunch of meds to keep things more or less under control...
I'm seeing my Specialist this coming Monday I'll talk to him about it and see what he says or if he's heard about it. |
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