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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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07-16-2016, 11:33 PM | #1 | |||
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I have been on IVIG for about 10 years and I have learned that it is not a bad thing to mix things up. I went from monthly to bi-weekly to weekly; spreading out the same overall dose. I have also gone back to bi-weekly for a while, but am now back on weekly. I get a smaller dose once a week rather than a large dose monthly (spread over 5 days in a row). When I feel the mg is catching back up to me, I call my neuro and we discuss my problems and he helps me make a decision.
Hope you find what works for you. |
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