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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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07-20-2016, 09:11 AM | #1 | ||
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Junior Member
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Hi fellow MGers, Since my diagnosis, 5/14, I have read extensively about Vitamin D3 and its benefits to those suffering from autoimmune diseases... I am convinced that it has a very important role to play in the treatment of AI disease as an adjunct to standard treatments. Currently taking 6K iu/d. Are most taking Vit. D3? Interested to know... Best Wishes, patrick123
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07-20-2016, 05:11 PM | #2 | ||
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Junior Member
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Yes I've been since I was diagnosed in '07 I'm taking an average of 40.000ui a week and it has helped me a lot when I was in my first stage of Myasthenia Ocular, in spring of April 2015 I had a CRISIS/FLARE and was hospitalized for 8 weeks and since have to do Plasmaphereris weekly plus Imuran and Mestinon and other meds....I'm still taking vitamin D3 which I think is still good for me at this time.
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07-20-2016, 07:04 PM | #3 | ||
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Junior Member
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Quote:
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07-20-2016, 09:26 PM | #4 | ||
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Junior Member
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I take vit D3 3000iu a day. My doctors check my blood level and adjust my dosage accordingly.
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07-20-2016, 08:58 PM | #5 | ||
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Junior Member
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I am taking 5000 units but because I was quite low.
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07-20-2016, 09:49 PM | #6 | |||
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Member
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I started out taking 50,000 ICU per week of prescription vitamin d about a year ago for a deficiency. I'm currently taking it every other week as my levels have improved.
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07-21-2016, 02:53 AM | #7 | ||
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Junior Member
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Sounds like you may be taking D2... D2 did not raise my serum level much at all, on a regimen similar to yours, but D3 did, very substantially...
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07-21-2016, 03:08 AM | #8 | ||
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Junior Member
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The link below is a very good source of Vit. D info. Many distinguished, and highly regarded researchers, Heaney, Garland, among others. An in depth reading of the material presented is well rewarded. As far as I can tell, all of their recommendations are backed by solid research. ...GrassrootsHealth | Vitamin D Action - GrassrootsHealth | Vitamin D Action
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07-21-2016, 07:10 AM | #9 | |||
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Member
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Everyone tells me I should take d3. I took it for months with no increase in serum levels, in fact, they went down. That's why my doctor started me on d2. It worked for me.
Everyone is different in the way they absorb nutrients, etc. if it hadn't worked, I'd be looking for something else to try. |
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07-21-2016, 09:35 AM | #10 | |||
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Wisest Elder Ever
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We have a Vitamin D thread here on our Vitamin forum...
Lots of collected information there. New medical information on Vitamin D + videos:
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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"Thanks for this!" says: | AnnieB3 (07-21-2016) |
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