Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


advertisement
Reply
 
Thread Tools Display Modes
Old 07-21-2016, 07:31 AM #1
sheri0565 sheri0565 is offline
Junior Member
 
Join Date: Nov 2012
Posts: 15
10 yr Member
sheri0565 sheri0565 is offline
Junior Member
 
Join Date: Nov 2012
Posts: 15
10 yr Member
Default Inversion or other alternative treatments

Hi everyone,
Just curious if anyone has tried some alternative treatments for MG.
Like an inversion table, or massage therapy, or red light therapy on the
muscle currently fatigued, acupuncture, etc...
Or even any herbal and supplement creations. (I did just read that vitamin D thread). Anything other than what modern medicine says, or what the pharmaceutical companies are selling. We all know they just create customers not cures!
Hope everyone has a great day!
Sheri
sheri0565 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
AnnieB3 (07-26-2016)
Old 07-21-2016, 07:54 AM #2
patrick123 patrick123 is offline
Junior Member
 
Join Date: Jun 2014
Posts: 37
8 yr Member
patrick123 patrick123 is offline
Junior Member
 
Join Date: Jun 2014
Posts: 37
8 yr Member
Default

Quote:
Originally Posted by sheri0565 View Post
Hi everyone,
Just curious if anyone has tried some alternative treatments for MG.
Like an inversion table, or massage therapy, or red light therapy on the
muscle currently fatigued, acupuncture, etc...
Or even any herbal and supplement creations. (I did just read that vitamin D thread). Anything other than what modern medicine says, or what the pharmaceutical companies are selling. We all know they just create customers not cures!
Hope everyone has a great day!
Sheri
Here is a Dr./Prof. who is using Vit D3 only to treat MS, and other autoimmune diseases. The video is long, but it is well worth viewing in its entirety. In Portuguese, but close captioned in English(bottom of screen)...Coimbra, vitamina D e patologie autoimmuni - YouTube
patrick123 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
AnnieB3 (07-26-2016)
Old 07-21-2016, 08:01 AM #3
patrick123 patrick123 is offline
Junior Member
 
Join Date: Jun 2014
Posts: 37
8 yr Member
patrick123 patrick123 is offline
Junior Member
 
Join Date: Jun 2014
Posts: 37
8 yr Member
Default Additional item...

Another item of interest... Myasthenia Gravis remission with 1, IU vitamin D daily – one person Jan 216 | Vitamin D Wiki
patrick123 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
AnnieB3 (07-26-2016)
Old 07-21-2016, 11:52 AM #4
sheri0565 sheri0565 is offline
Junior Member
 
Join Date: Nov 2012
Posts: 15
10 yr Member
sheri0565 sheri0565 is offline
Junior Member
 
Join Date: Nov 2012
Posts: 15
10 yr Member
Default

Thanks Patrick! I will definitely read and watch.
sheri0565 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
AnnieB3 (07-26-2016)
Old 07-25-2016, 09:04 PM #5
Mw40love Mw40love is offline
Junior Member
 
Join Date: Jul 2016
Posts: 14
5 yr Member
Mw40love Mw40love is offline
Junior Member
 
Join Date: Jul 2016
Posts: 14
5 yr Member
Default

Omg, I can't even breathe laying down! Thinking about trying to breathe inverted makes me crazy!
Mw40love is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
AnnieB3 (07-26-2016)
Old 07-25-2016, 11:37 PM #6
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
Smile

Hi, Sheri. I can appreciate wanting to find something, anything that will help MG improve, please take any information out there with some healthy skepticism.

There are many sensible ways to help MG. Get enough sleep, eat healthy foods, take sensible supplements, reduce stress (because it shortens telomeres, thereby promoting aging), and so many other sensible ways to keep the immune system happy.

Yes, vitamin D is essential. Newer studies do show that it might be the egg, not the chicken and not only a coincidental finding. It used to only be associated with lupus. Now they're realizing how essential it is to health. But it isn't the end all be all of autoimmune diseases, either.

There's also Huperzine A. But it can make MG worse, depending upon what other treatments someone is on. We should inform all of or physicians about anything we take. Nothing is benign and can interact with other drugs or foods that someone digests.

Anyone else have any input on the topic?

Annie
AnnieB3 is offline   Reply With QuoteReply With Quote
Old 07-26-2016, 09:26 AM #7
sheri0565 sheri0565 is offline
Junior Member
 
Join Date: Nov 2012
Posts: 15
10 yr Member
sheri0565 sheri0565 is offline
Junior Member
 
Join Date: Nov 2012
Posts: 15
10 yr Member
Wink

Thanks Annie, you are so right. I believe everything should be treated with a hefty dose of skepticism, especially 'regular' western medicine! But for me that was always the easiest because of insurance. Now that I really don't have insurance, I have been trying to figure out if there are different paths to try.

There was someone once on a forum that I had found when first diagnosed that was going to try one of those machines that women used in the 60's to 'jiggle' fat away. You know the ones with the big band like thing that went around their bottoms? That may sound crazy, but there were a couple people that she had found swore it helped. One man's trash is another's treasure.

I hope everyone has a great day!!!
sheri0565 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
AnnieB3 (07-26-2016)
Reply

Tags
alternative, inversion, medicine, therapy, treatments


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Possible Alternative Treatments? GloryJay Myasthenia Gravis 2 04-29-2013 12:12 AM
Alternative Treatments wdl6591 Traumatic Brain Injury and Post Concussion Syndrome 10 02-24-2012 12:28 AM
Alternative Treatments yannimac Traumatic Brain Injury and Post Concussion Syndrome 4 09-26-2007 07:49 AM
Hi--looking for those interested in PD and alternative treatments Kathie Parkinson's Disease 8 04-29-2007 08:23 AM
Hi--looking for those interested in PD and alternative treatments Kathie New Member Introductions 3 04-28-2007 02:39 PM


All times are GMT -5. The time now is 04:11 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.