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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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07-21-2016, 07:31 AM | #1 | ||
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Junior Member
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Hi everyone,
Just curious if anyone has tried some alternative treatments for MG. Like an inversion table, or massage therapy, or red light therapy on the muscle currently fatigued, acupuncture, etc... Or even any herbal and supplement creations. (I did just read that vitamin D thread). Anything other than what modern medicine says, or what the pharmaceutical companies are selling. We all know they just create customers not cures! Hope everyone has a great day! Sheri |
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"Thanks for this!" says: | AnnieB3 (07-26-2016) |
07-21-2016, 07:54 AM | #2 | ||
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Junior Member
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Quote:
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"Thanks for this!" says: | AnnieB3 (07-26-2016) |
07-21-2016, 08:01 AM | #3 | ||
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Junior Member
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Another item of interest... Myasthenia Gravis remission with 1 , IU vitamin D daily – one person Jan 2 16 | Vitamin D Wiki
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"Thanks for this!" says: | AnnieB3 (07-26-2016) |
07-21-2016, 11:52 AM | #4 | ||
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Junior Member
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Thanks Patrick! I will definitely read and watch.
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"Thanks for this!" says: | AnnieB3 (07-26-2016) |
07-25-2016, 09:04 PM | #5 | ||
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Junior Member
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Omg, I can't even breathe laying down! Thinking about trying to breathe inverted makes me crazy!
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"Thanks for this!" says: | AnnieB3 (07-26-2016) |
07-25-2016, 11:37 PM | #6 | ||
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Grand Magnate
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Hi, Sheri. I can appreciate wanting to find something, anything that will help MG improve, please take any information out there with some healthy skepticism.
There are many sensible ways to help MG. Get enough sleep, eat healthy foods, take sensible supplements, reduce stress (because it shortens telomeres, thereby promoting aging), and so many other sensible ways to keep the immune system happy. Yes, vitamin D is essential. Newer studies do show that it might be the egg, not the chicken and not only a coincidental finding. It used to only be associated with lupus. Now they're realizing how essential it is to health. But it isn't the end all be all of autoimmune diseases, either. There's also Huperzine A. But it can make MG worse, depending upon what other treatments someone is on. We should inform all of or physicians about anything we take. Nothing is benign and can interact with other drugs or foods that someone digests. Anyone else have any input on the topic? Annie |
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07-26-2016, 09:26 AM | #7 | ||
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Junior Member
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Thanks Annie, you are so right. I believe everything should be treated with a hefty dose of skepticism, especially 'regular' western medicine! But for me that was always the easiest because of insurance. Now that I really don't have insurance, I have been trying to figure out if there are different paths to try.
There was someone once on a forum that I had found when first diagnosed that was going to try one of those machines that women used in the 60's to 'jiggle' fat away. You know the ones with the big band like thing that went around their bottoms? That may sound crazy, but there were a couple people that she had found swore it helped. One man's trash is another's treasure. I hope everyone has a great day!!! |
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"Thanks for this!" says: | AnnieB3 (07-26-2016) |
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