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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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07-26-2016, 06:24 PM | #11 | ||
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07-27-2016, 10:22 AM | #12 | ||
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Junior Member
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Hi guys,
After trying multiple drugs and over 70 plus PlasmaPherisis, RITUXAN this coming September I'm probably going to be undergoing a STEM CELL transplant... they've done 8 patients so far with great success, no more meds nor need for PlasmaPherisis!!!!😂😂😂 I just have to talk myself into it... they're are risks but I think they're well worth it!!! |
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"Thanks for this!" says: | pingpongman (07-27-2016) |
07-27-2016, 12:08 PM | #13 | ||
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Quote:
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07-27-2016, 02:42 PM | #14 | ||
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I'm Canadian YES it's covered under our Government med plan...
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07-27-2016, 06:14 PM | #15 | ||
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07-28-2016, 04:54 AM | #16 | ||
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I've tried a lot. One tends to do that when desperate enough.
However, only prednisone, ivig and bipap help me survive the day. I say survive because I still struggle every day. |
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"Thanks for this!" says: | pingpongman (07-28-2016) |
07-28-2016, 03:21 PM | #17 | ||
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Junior Member
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I'm willing to chance , I'm to young to keep taking Imuran for a undetermined amount of time ... I say it's more dangerous to stay on Imuran than doing a Stem Cell our hospital has 8 patients done with 100% success rate, they use your own stems so the risks are lessened by a WHOLE lot.
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07-29-2016, 01:14 AM | #18 | ||
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I was 19 when I was started on prednisone, imuran etc. Tried cellcept, mtx and many more. I am not even 30 and thanks to my longterm prednisone us I have other health problems too. Tbh, I'd rather face longterm imuran risks than what I am facing now. |
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07-29-2016, 04:08 AM | #19 | |||
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Grand Magnate
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Out of curiosity, which kind of stem cells are being considered for you - there are many different kinds of stem cells, all with different biological properties?
__________________
Knowledge is power. |
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07-29-2016, 08:30 AM | #20 | ||
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Junior Member
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Now the tough part CHEMOTHERAPY start's to KILL your immune system! this can vary for the time length of treatment, again once they reach a certain point they STOP the chemo treatment then reinfuse the stems cells they had earlier collected from you and restart your immune system or reboots it to a fresh start... Meaning having to re do all your vaccines bla bla bla. All the above all done in stages and I'm sure I'm missing out on some details but it's an overview, like I said I'm no doctor but if. I do go ahead with it I'll try to fill you guys in with the progress and bump's in the road😉 |
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