Dear Poetist,

I know you wrote to Annie, but I hope you don't mind if I respond also. I hope you will talk to your doctors about your problems with breathing at night. I had this problem also, and it is related to my generalized muscle weakness. It affected my respiratory muscles. I have some problems breathing during the day, which fluctuates with how I am doing. But it is more prominent at night, because when you lie down, it can make it harder to breathe if your respiratory muscles are weak. I see a pulmonologist due to my breathing issues, and underwent a sleep study. He prescribed a BiPAP/AVAPS machine, which helps me breathe overnight (it is similar to a CPAP machine). It has really helped. It may be possible that you could benefit from something like that also if you are having trouble breathing at night. Also, if you ever have trouble breathing during the day, you can use the machine to help support your breathing during the daytime hours. Contact your doctors and ask them for an appointment soon. I know that's a very uncomfortable feeling, and there is something that can be done to help you. Meanwhile, if you sleep propped up on pillows, it can help on the short-term, but do contact your doctors.

Take care,
Erin

Thanks, Erin.

FYI: I had a pulmonary function test over the years, and it shows that my breathing is better. Of course, I'm not lying down, when I take it.

Plus, I have had sleep studies. No problems. I sleep like a baby w/that thing on at night. LOL.

Anyway, I feel as if it's muscle weakness that is causing this. As a remedy, the doc told me to take 180 mg of Mestinon at night and follow up with a 60 mg in the morning. It works for the most part.

However, the other night w/in 2 hours of taking 180 mg of Mestinon, I felt my torso, especially around the chest area, feeling as if was being weighed down, so I took 60 mg of Mestinon. There were no problems at night.

Does this sleeping issue mean weak muscles? I just need to hear from people out there, because the docs can't pin point any other cause.