MG is a brand new diagnosis for me. I keep seeing references to MG crisis but am unsure what those are. Can someone please explain? Have you ever had one? What were the first signs? What is the best course of action in the event of one? Does everyone eventually have one?

dl4plans,
I see on your previous post, you have some answers, but there will be lots more questions.
I am not sure if a crises is always going to happen. I thought I was doing great on mestinon for about 3 years ( I was diagnosed in 2012). Most of the people on this forum seem to have had crises problems, but I guess that would cause them to be here.
I had mine in Oct 2015 and again in Jan 2016. I learned I couldn't work, like I had been. I am 78 now, so could have been retired anyway. I am now!!!.
You will get lots of answers here, if you stay on this forum.
Be careful of issues such as breathing, swallowing, and extreme fatigue, as those can be signs of a crises.
Hope you can continue to do well.
FREDH

I think it is when you need ER / hospital for extreme /severe symptoms.

You can use the search to find more posts/threads on the topic.
here is one thread -
Problems with ER?

I think it is good to ask your doctor these questions, because they are very important. But we can provide some information here.

I think symptoms vary with myasthenia gravis, and not everyone may have a crisis. However, it is something that everyone should know about, and be ready to deal with should it occur. I have not had a full-blown crisis which required intubation, but I have had serious exacerbations that required hospitalization and treatment. With a crisis, one can have very severe difficulty breathing and/or swallowing. Breathing support is needed, either with non-invasive ventilation or sometimes with intubation. People can become quite weak, and have tremendous difficulty walking. They might fall due to weakness in their legs, for instance, and need assistance to get up again. They could also have trouble with double vision and drooping eyelids.

You can help yourself avoid this by doing whatever treatment(s) your doctor has recommended for you faithfully. Getting enough rest is important, and not overdoing it in terms of activities. Heat is a problem, and so is stress. If you start noticing any increased symptoms, contact your doctor and let them know. If you are having increased trouble breathing or swallowing, that can be quite serious; it is good to be evaluated at an emergency room. It would be good to talk with your doctor at your next visit about their advice for dealing with a crisis should it occur - find out what they recommend. Hopefully it won't happen to you, but if it does, it's good to know what to do.

Thinking of you,
Erin