Hi, rMuD. Welcome.

HLA B27 is associated with Ankylosing Spondylitis.

Do you have a good primary doctor or endocrinologist? Having your thyroid tested, especially if you have MG, is a very smart thing to do AND on a regular basis. Many people with MG have some sort of thyroid problem. Stupid doctor.

Have you had your vitamin B12 checked? If not, I highly recommend you do, plus your vitamin D level. Those are very common deficiencies.

Obviously, you do have things wrong with your health. And MG can be life-threatening. Kind of hard to go on with one's life when one is so weak and unable!

I hope you will start receiving the care that you deserve!

Annie

HLA-B27 Is also the test for Reactive Arthristis, Ankylosing Spondylitis can be part of RA as well, but not always.
HLA-B27 antigen: MedlinePlus Medical Encyclopedia

Yes, I have the top multi discipline Neuro medical group for rare medical conditions that have worked on me for almost a decade. MG was missed. MP was also missed for many years. I am difficult. MG fooled the head of Neuro-Ophthalmology for Case Western Reserve University for 9 months as well.

So yes, I have all my ducks in a row. Just waiting for the slow University hospital to get the Thyroid blood panel and the anti-body panels done.. it has been a week and no results yet. Getting annoyed! After that if I see some reason to continue down the MG path, the CAT scan will follow. With the trouble I've had with sternum, I'm pretty sure we are going to find something. Way too many things fit.

I've hit my out of pocket max this year, It's full speed ahead! Neurologist MG specialist at Cleveland Clinic appointment is set for Oct 5th. After the blood work is in, I'll start the Tuesday Morning, cancellation appt checks.

Thanks for the input!

Rob.

Yes, but your current issue is not inflammatory, correct?

Have you seen a rheumatologist?

Annie

Do not have a referral for rheumatology yet. Still after a week, no report from blood work from thyroid, anti-bodies (Total of 12) generated from neuro-ophthalmology, CAT scan ordered, and Referal to neurology (oct 5th).

What am I looking for as far as inflammatory to get a referral for?

Between arthritis and what the other doctor called "calcium deposits," it's a good idea to see a rheumatologist. They are the "itis" doctors.

Annie

ah! there are assumption that there was actually calcium, thinking there was maybe a build up of anti-bodies or whatever.. and this was in the muscle not in the joints. and there was lack of inflammation, that made the carpal tunnel diagnosis odd.

So first round of Blood work is clear, CT Scan is Clear. Thyroid is on the low end but normal, AchR Binding,Blocking,Modulating that were sent out to a lab came back negative but were listed as experimental and non-diagnostic. Seeing a Neuro-Muscular Neurologist for my Birthday Next week. Physical symptoms are still showing. Though with reviewing my life I have never been able to smile, and my son does not appear to either. So that symptom is off the list possibly. There were other medications that I was on that may interfere with MG that we have taken me off of that were doing odd things.

I am the anti-Musk type??? Or nothing at all! It appears the muscles are increasing fatigue with sustained effort. Reading up on the Musk Type, and symptoms just now, Dr. Yi seems to be one of the authors on this type. That is who I am seeing next week.