Between arthritis and what the other doctor called "calcium deposits," it's a good idea to see a rheumatologist. They are the "itis" doctors.

Annie

ah! there are assumption that there was actually calcium, thinking there was maybe a build up of anti-bodies or whatever.. and this was in the muscle not in the joints. and there was lack of inflammation, that made the carpal tunnel diagnosis odd.

So first round of Blood work is clear, CT Scan is Clear. Thyroid is on the low end but normal, AchR Binding,Blocking,Modulating that were sent out to a lab came back negative but were listed as experimental and non-diagnostic. Seeing a Neuro-Muscular Neurologist for my Birthday Next week. Physical symptoms are still showing. Though with reviewing my life I have never been able to smile, and my son does not appear to either. So that symptom is off the list possibly. There were other medications that I was on that may interfere with MG that we have taken me off of that were doing odd things.

I am the anti-Musk type??? Or nothing at all! It appears the muscles are increasing fatigue with sustained effort. Reading up on the Musk Type, and symptoms just now, Dr. Yi seems to be one of the authors on this type. That is who I am seeing next week.

.........Don't get it. Please explain... Why give a test that is non-diagnostic? The Mayo Clinic is the lab of choice for these (AchR antibody) assays. Diagnosing MG is fraught with many false negatives. All the best... patrick123

I do not know either. I am not discouraged. It will answer many questions, if not, It took 15 year to figure out MP, I never expected MG, but I suspected something was poisoning my nervous system for years.

Today is D-Day and my B-Day. I see the Specialist that wrote the paper on New techniques on diagnosing MG in 2013. At Cleveland Clinic the #2 Research Hospital in the World. I'm sure he will say I do not have MG. Of course as I'm sitting here struggling to breathe, trying to hold my head up, looking blurred vision, 1/2 closed eyes. Been a long road to, this was a surprise diagnosis, I thought I was done and just had to get off my *** and being knocked on my butt every other month was me just not trying hard enough. After a Torn Achallies, MP, Carpal Tunnel (golfers Elbow/MP), CN4 Palsy in the past 8 years.. WTH what is another M.x Disease to add to the pile.

Other Muscle Symptoms. After working out I typically schedule my chiropractor appts. The muscle weakness in my legs are at the point my legs shake as in misfiring. Just assumed it was normal.

They did OT for Carpal Tunnel last year on my Hands: First visit they did strength tests on my fingers/Hands at the beginning of the visit. Had the Strength of a 26 year old. Second visit, she forgot and did it at the end of the session, I lost 20% hand strength in two weeks.

Cleveland Clinic Visit last week did not seem very promising for many answers. It was typical neurological visit. test standard reflexes, take history. Said CN4 Palsy was not typical for MG, the negative anti-bodies blood test. So he was not sure. We re-did blood tests, added anti-musk even though he said anti-musk is only african-women. Added single fiber EMG. to make 100% it was not MG. Was told I would have to wait 53 days for a single Fiber EMG. end of November.

October 10th today (5 days, not 53).. I had the Single Fiber EMG on the Orbicularis Oculi at CCF. The Muscle was fatigued badly about 3/4 of the way through the test, was told he had enough data, asked if I had any Botox, etc.. would let my neurologist know this evening. Waiting on test results. No idea what that means. I know towards the end, I was sqeezing my eye closed much harder, and it was jittering I was struggling, not tired or sore, just more difficult. But that could just mean what frequency he was on at the time.

Inability to smile seems to be genetic, my brother can not smile either, nor my son. Maybe I am smiling, or recruiting, just the corners of my mouth just do not go up. 23andme genetic test sent out in the mail today.