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Old 08-24-2016, 03:51 PM #1
rMuD rMuD is offline
Junior Member
 
Join Date: Feb 2012
Posts: 37
10 yr Member
rMuD rMuD is offline
Junior Member
 
Join Date: Feb 2012
Posts: 37
10 yr Member
Thumbs Up pre-diagnosis

Last Winter. Lost use of my hands and was blamed on Carpal Tunnel after building a the lights on a 50ft christmas Tree for a outdoor mall. It probably was partially that. But after that, barely able to open a bag of potato chips the EMG came back mild. Level 1. The Chiropractor that was more therapist/neuromuscular specialist used the term "My muscles are Sticky" meaning she felt calcium deposits on my arms. Tunnels were mostly clear on my wrists, injections of steroids in my wrists did nothing. I got very bad CN4 Palsy about a month later Vertical and Rotational for several months. 6 months later. Students teachers checking my eyes could find the diplopia, but after wards the head of the department could not. Basically they took too long.. and fatigued my eyes. Fatigue tests pretty much were able to show the divergence consistency. So off to the blood work and waiting for the results for almost a week now!

Never in a million years, researching when I first got CN4 palsy did I think MG fit what I had based on what the medical sites quote for symptoms. If one of them had quoted the inability to smile, I would have dug deeper. The eye drooping is so rare and mild and late at night, I just wrote that off.

So over the past decades of wondering why I can't smile, thinking it was normal that you could forget how to swallow on a rare occasion, choking on saliva is normal, that I have no clue what was poisoning the nerves in my arms and legs. Why after working out of town for a 2-3 weeks, I would come home and be sick for a month. The shear aking of my hands and feet after short working spells, need to sit.. Exhaustion needing a nap in the afternoon. On top of that I had Meralgia Paresthetica where the LFCN was so damaged they had to cut that peripheral nerve out of my hip because it was causing so much pain a few years ago. Always have to wear heavy socks. I pretty much pick up the minor things from reading and watching this forum here.. Watch I come back negative Everything seems to fit very well.. At one point I was trying to get my thyroid checked, but my PCP refused, and even HLA-B27 thinking it was reactive Arthritis over a decade ago before they figured out the MP in my hip. MP now MG. My last name is MUD too! I have been told for 20+ years there is nothing wrong with me. Just change how to live your life.
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