I forgot to add.

In 6 month I went from taking 90mg of Mestinon a day to taking a 180mg time span and 300mg of the regular. My eyes are a little sore (getting back in shape) but my vision is much better. Neuros usually will wait for you to request an increase in dosage, since higher doses can lead to diarrhoea. I recommend trying the Timespan($$$$) or just asking for an increase in normal dosage.
Also, regular Mestinon only stays in your system for about 4 hours. You should try to take it in 4 hour intervals if you want to stay 'even'. I take mine every 3 hours. Hope this helps.


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I would like to correct a couple of your statements, SIM52.

First, Mestinon kicks in after about 30 minutes. Two hours after that it wears off. So there really only is a matter of two hours of use.

Also, MG has absolutely nothing to do with the brain. No matter of plasticity or adapting of the brain will alter our weak muscles enough to refocus them. Mestinon is also not normally the best drug to address double vision.

One can't "force" the eye muscles to become strong enough so that the left and right eye muscles focus equally. Overdosing with Mestinon is not a smart thing, either. Your eyes could be "sore" because the muscles are being overdosed. Just as muscles without enough acetylcholine can twitch, cramp, or spasm, the same thing happens with too much of it.

Not everyone with MG is the same. Some people can handle a higher dose of Mestinon, or take it more often, but others can't.

Jane is pretty much a newbie, and is not definitively diagnosed. She needs the most accurate information she can have. Also, it is always best to consult with a neurologist before making any drug changes.

Well, that's more than two things!

I appreciate your viewpoints, but we do need to be as accurate as possible in relaying them. Thanks.

Annie