Is this the new "line" that is out there among neurologists? That Mestinon is the only drug necessary to treat MG unless we're in a crisis? Is this due to the one lawsuit when someone didn't have MG and they gave someone an immunosuppressant? Talk about an overreaction.

I've personally heard this recently as well. If this is the new stance of neurologists, then we are in trouble, guys.

If Mestinon is all a MG patient needs, then CoQ10 is all a cancer patient needs.

A muscle and nerve specialist is a neurologist. She probably meant a MG expert.

It sounds as though you aren't doing well, so it IS time for more treatments. Again, if you become so bad that you can't breathe, swallow, or move well, you need to be in an ER. Are you that bad now?

I thought they already had a plan in place for you. If not, I hope they will very soon!

Annie