FAQ/Help |
Calendar |
Search |
Today's Posts |
|
Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
Reply |
|
Thread Tools | Display Modes |
|
10-11-2016, 02:41 PM | #1 | ||
|
|||
Junior Member
|
I emailed my neuro couple days ago about my symptoms which have been getting worse. Whether i need aditional treatment beside mestinon. And this is her response
"Please follow up, if you wish I can also shceuled you with our Specialist on muscle and nerve. Steroids,thymectomy, IVIG or plasmapharesis during exacerbations are used. However, Mestinon is the main drug used." Muscle and nerve specialist? What kind of doctor is this? I thought a neurologist handle muscle and nerve. |
||
Reply With Quote |
"Thanks for this!" says: | St George 2013 (10-11-2016) |
10-11-2016, 03:25 PM | #2 | ||
|
|||
Member
|
It can help to see a neuromuscular specialist (that is the nerve and muscle specialist that your doctor mentioned). These are neurologists who have done extra training in diagnosing and treating disorders like myasthenia gravis. Regular neurologists can help, but patients are often referred to a neuromuscular specialist to get input and care. If your condition is getting worse, this other doctor may be able to suggest other treatments that will help. Mestinon is a good medication, but you may need more than that, and perhaps they will recommend that and help monitor it.
Take care, Erin |
||
Reply With Quote |
"Thanks for this!" says: | St George 2013 (10-11-2016) |
10-11-2016, 09:02 PM | #3 | ||
|
|||
Junior Member
|
Quote:
|
||
Reply With Quote |
10-11-2016, 10:48 PM | #4 | ||
|
|||
Grand Magnate
|
Is this the new "line" that is out there among neurologists? That Mestinon is the only drug necessary to treat MG unless we're in a crisis? Is this due to the one lawsuit when someone didn't have MG and they gave someone an immunosuppressant? Talk about an overreaction.
I've personally heard this recently as well. If this is the new stance of neurologists, then we are in trouble, guys. If Mestinon is all a MG patient needs, then CoQ10 is all a cancer patient needs. A muscle and nerve specialist is a neurologist. She probably meant a MG expert. It sounds as though you aren't doing well, so it IS time for more treatments. Again, if you become so bad that you can't breathe, swallow, or move well, you need to be in an ER. Are you that bad now? I thought they already had a plan in place for you. If not, I hope they will very soon! Annie |
||
Reply With Quote |
"Thanks for this!" says: | pingpongman (10-11-2016) |
10-11-2016, 11:26 PM | #5 | ||
|
|||
Junior Member
|
Quote:
Last edited by ttmmkk001; 10-11-2016 at 11:41 PM. |
||
Reply With Quote |
10-12-2016, 07:35 AM | #6 | ||
|
|||
Junior Member
|
The tooth infection has your immune system ramped up. In this state, the production of offending antibodies is increased, and an increase in severity of symptoms/impairment is a consequence. Were you given an antibiotic for the infection? There are antibiotics that we as MGers must be wary of. Please be sure any antibiotic you take is safe for those with MG. Please ask your dentist which anesthetic he will be using and be sure you know which are safe for MGers, and which are not. patrick123
|
||
Reply With Quote |
"Thanks for this!" says: | ttmmkk001 (10-12-2016) |
10-12-2016, 08:48 AM | #7 | ||
|
|||
Junior Member
|
Quote:
|
||
Reply With Quote |
10-12-2016, 10:30 AM | #8 | |||
|
||||
Member
|
I'm with Patrick123. The problem with the tooth is making the mg worse. As your immune system ramps up to try and handle the infection, it also makes more T-cells that make the mg worse. If you get the infection taken care of, it can only help the mg. As far as local anesthesia, I had a root canal done with 2 sessions of local anesthesia and had no problems. I don't recall the exact drug used, but my research indicated that there were no specific local anesthesia that would aggravate the mg.
Good luck with the extraction and hopefully, it will help with the mg. |
|||
Reply With Quote |
"Thanks for this!" says: | ttmmkk001 (10-12-2016) |
Reply |
|
|
Similar Threads | ||||
Thread | Forum | |||
nerve entrapment within a muscle? | Peripheral Neuropathy | |||
Nerve & muscle Biopsies | Myasthenia Gravis | |||
muscle or nerve twitching?? | Spinal Disorders & Back Pain | |||
Nerve and muscle specialist? | Peripheral Neuropathy | |||
Muscle? Nerve? Confused! | Peripheral Neuropathy |