Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


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Old 01-07-2017, 02:40 PM #1
vickypanda vickypanda is offline
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Join Date: Jun 2016
Location: East Yorkshire
Posts: 23
5 yr Member
vickypanda vickypanda is offline
Junior Member
 
Join Date: Jun 2016
Location: East Yorkshire
Posts: 23
5 yr Member
Default Emg

My daughter saw a neurologist on the 14th December almost a year after a positive blood test. He said she could go on mestinon so She has finally started taking mestinon 30mg twice daily and is getting some relief, she is less fatigued and finding it easier to concentrate and take in information at school and is less fatigued at school. She has been referred to a muscle dr having an mri scan on her thymus gland and he has referred her for an Emg which she had on Friday. The dr who did the Emg was very obnoxious! He asked what her symptoms were and was nasty about everything she said! Apparently myasthenia doesn't cause fatigue , doesn't make your muscles ache or tire them out it just makes them weak nothing else!!! She wasn't allowed to look at me and I was told off for talking !! Apparently she isn't a child and can talk for herself, she was nervous expecting needles to be stuck in her we didn't even tell him she was taking mestinon he Was so nasty and rude!! The test he did was just stuck some pads to 3 fingers and her elbow he did about 5 shocks in a row one after the other about 4 times said it didn't show anything up and that was it. It was basically the same test I had for carpal tunnel 11 years ago. Is this the correct test for myasthenia? We were under the impression they were going to put needles into her muscles in various places! Has anyone else had this done and did it show anything up?
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"Thanks for this!" says:
FREDH (01-07-2017)
 

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