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| Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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01-08-2017, 09:03 PM
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Junior Member
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I've been off Prednisone now since June 2016 and seemed to help a bit but I'm still struggling with short memory and searching for words when under stress, I'm now taking Mestinon 5 times a day, Timespan at bedtime, Imuran daily and IVIG every 3 weeks.
I'm more or less living a normal life but it's been a rocky road to adapt, I'm also back to work on a shorter schedule... |
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01-09-2017, 11:16 AM
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Quote:
We sound somewhat alike in our treatments. I take Mestinon 6 times a day, still on 10mg Predisone (getting off slowly) timespan at bedtime and Imuran daily. No IVIG. I had Plasmaphersis instead. I feel like I take medicine all day long, but seems to work. It has been a year since the hospital. Good luck FREDH |
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02-04-2017, 03:40 PM
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Junior Member
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this is what is fondly called brain fog. i think it just takes more brain capacity for us to operate "normally" or it could be from prednisone. that seems to be the go to thing to blame or anything new wrong with me
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| "Thanks for this!" says: | FREDH (02-04-2017) |
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