I know a woman who for 25 years, EVERY test she had for myasthenia gravis was negative. Then they took out her thymus gland. She said it was spitting out antibodies. Proof positive that she had myasthenia gravis.

I had all the tests. I am dead on for 20 years every symptom it seems MG. but Thymus Gland is normal, Blood work is normal. Single Fiber EMG normal. The Neuro-Ophthalmologist I am seeing. Which is the head of Neuro-Ophtamology at Case Western Reserve University. He said it is a very tricky disease. He has not ruled it out yet, but I am still doing ok, and my symptoms are not severe enough to put me on any medications yet.

The Doctor that wrote some papers on finding the difficult cases of MG that I saw at the Cleveland Clinic, was very dismissive. Did no fatiguing tests. Said you can not have MG if you have CN4 Palsy, only did the instant neural deficiency tests. It takes 1-2 minutes of muscle testing before you see weakness. I can work out for a hour, and I no longer have reflexes for the next 6-8 hours. Next day I can go to the doctor, back to normal or hyper reflexes. Been that way for many years.

One thing that I am very greatful for is that went through another condition called MP which was very painful that they could not figure out for 15 years. I learned mindfulness meditation. They taught me at the Cleveland Clinic how to reset my brain in how medicine works and doctors. How anxiety, inflammation, and pain are one in the same. So now I do not let fear and pain hurt me. So not knowing, does not depress me, does not hurt me, does not make my chest tight, and make it difficult to breath. I do water aerobics 3 times a week to keep my strength up, to talk with people, keep my mind healthy, it keeps me relaxed, and my muscles moving. Whatever is wrong with me, it is wrong with me. There is not going to be a magic pill, if there is, I am not going to live my life looking for it. I am going to live my life. It drives me nuts, like I have a million things to do today, and why am I here. I forgive myself for going off on a tangent, and back to work.

Hang in there!

Rob.