[vickypanda]

My daughter saw a neurologist on the 14th December almost a year after a positive blood test. He said she could go on mestinon so She has finally started taking mestinon 30mg twice daily and is getting some relief, she is less fatigued and finding it easier to concentrate and take in information at school and is less fatigued at school. She has been referred to a muscle dr having an mri scan on her thymus gland and he has referred her for an Emg which she had on Friday. The dr who did the Emg was very obnoxious! He asked what her symptoms were and was nasty about everything she said! Apparently myasthenia doesn't cause fatigue , doesn't make your muscles ache or tire them out it just makes them weak nothing else!!! She wasn't allowed to look at me and I was told off for talking !! Apparently she isn't a child and can talk for herself, she was nervous expecting needles to be stuck in her we didn't even tell him she was taking mestinon he Was so nasty and rude!! The test he did was just stuck some pads to 3 fingers and her elbow he did about 5 shocks in a row one after the other about 4 times said it didn't show anything up and that was it. It was basically the same test I had for carpal tunnel 11 years ago. Is this the correct test for myasthenia? We were under the impression they were going to put needles into her muscles in various places! Has anyone else had this done and did it show anything up?

[pingpongman]

I don't know what it is with these neuros. I have a neuro-muscular Dr who is the biggest jerk I know of. I see him about once a year. I only see him once a year but only because he is brilliant. At least I know what to expect
Mike.

[jvaagen]

Back in '05 when I had an undiagnosed myasthenia Gravis crisis I had an emg, ekg, muscle test with the needles up and down my arms and legs (that one hurt like no other) but the only test that gave the Dr. The MG diagnosis was a blood test specifically for MG or MS.

[vickypanda]

Originally Posted by jvaagen

Back in '05 when I had an undiagnosed myasthenia Gravis crisis I had an emg, ekg, muscle test with the needles up and down my arms and legs (that one hurt like no other) but the only test that gave the Dr. The MG diagnosis was a blood test specifically for MG or MS.

Yes my blood test was positive and my neurologist told me that a positive blood test was a positive diagnosis and prescribed me mestinon which has helped me especially my droopy eyes and swallowing the most. My daughter saw a different neurologist (unfortunately mine was off sick which is typical) he wants to check for other autoimmune diseases at least he has given her mestinon and it is giving her some improvement but the Emg that you have had sounds more like the one we were expecting her to have.

[Teljemo]

I had needles with electricity in my face and shoulders..
They called that room "the electric chair" 😛

[winic1]

I just had an emg yesterday. I was told to stop all mestinon at least 24 hours before the test, or it could affect the results. Were you told that for your daughter?


My emg involved a variety of arm and leg testing, with the pads in different places and the shocks also varying in place and strength. Then there was the needle testing, too. No neck and face this time, thankfully. Had that in the past. No fun.


My doc was puzzled that the emg didn't show anything, and my AChR is negative, but the mestinon is having a dramatic effect on me (it's only been a few weeks).

[vickypanda]

Originally Posted by Teljemo

I had needles with electricity in my face and shoulders..
They called that room "the electric chair" 😛

Sounds very painful!!