FAQ/Help |
Calendar |
Search |
Today's Posts |
|
Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
|
Thread Tools | Display Modes |
01-30-2017, 07:40 PM | #1 | ||
|
|||
Member
|
Finally got a doctor to try mestinon for me, and it works. That means I must have some kind of mg, right? It works. Other people can see how much better I move and stand and look. We're calling them my "magic pills" because they have given me myself back after so many years.
Doctor started me at "1/2 pill (30mg) 3 times a day, work up to 1 pill (60mg) 3x a day". Turns out 1/4 pill every 2-3 hours works much better than letting it go up and down as it wears off in between only 3 hours a day for a bigger dose. Doctor says she's fine with that. Because I can breathe better, I keep it going all night, too, I wake up every few hours anyway (pain from other issues, and breathing issues). Insurance insists we use a mail-order pharmacy after 2nd refill. Fine. Have mail order place call Dr's office for the prescription. Just got first refill in the mail. Supposed to be 90 day's worth. Well, it's just 90 pills, 60mg each, with instructions "Take 1/2 pill every 6 hours as needed." But there's only enough for, at most, 1 pill per day, no matter how I split it up!!! Why would they do this to me? Does the sheer stupidity never end? What next, I get told, well, your blood test was negative, so we're taking the pills away, good luck, goodbye? |
||
Reply With Quote |
"Thanks for this!" says: | FREDH (01-31-2017) |
|
|
Similar Threads | ||||
Thread | Forum | |||
does prednisone make sense? | Peripheral Neuropathy | |||
Can anyone help me make sense of this?? | Myasthenia Gravis | |||
I'm not sure if I can make sense of this | New Member Introductions | |||
Thoughts that don't make sense. | Traumatic Brain Injury and Post Concussion Syndrome |