What r the symptoms of fibromyalgia? My reg dr says that @ 50 mgs I shouldn't have any pain, but I always do........I know it isn't in my head.........

I am so confused!

Any help would be appreciated!

Hope you are doing GREAT today!

Can't wait to hear from you!

Erin

Since I didn't actually have fibromyalgia, I don't know that I am the best to ask about the symptoms, but the rheumatologist knew right away because there are specific points on the body where you can't stand to be touched (I know the chest plate area is one) and those weren't the areas I hurt in, and the pain I had actually got better with pressure.

That's why I get concerned about docs herding us into the classic groups - it may be true for some, but we are individuals and there are unfortunately alot of different syndroms, conditions, diseases, medication reactions, etc. that can cause the pain.

I would have to agree with the neuros on one thing though. In pure MG with no other complication there is no pain. My conditions trade off, kind of, and both cause weakness but they are very different.

My best example is when we were fishing once, I actually forgot I was having MG problems and when a fish hit my line I went to jump up from my chair like I always do to hook it and.....

fell straight over on my face cuz from the hips down, nothing responded! It would've been very embarrassing, but I could just imagine what I looked like as I let out the big grunt on my way down, so I just starting laughing my behind off! That's still one of our family funny fishing stories.

Other times, the pain tells me I'm having problems and I automatically without thinking about it use my hands to push out of a chair.

I'm sure this didn't help much. Sorry.

I don't know if I have MG, but I've been suspecting that my Fibro is a result of the MG (and/or another condition).

And I think because of the Fibro, I am not getting properly diagnosed.

Just my guess, but I feel that MGers with pain are often having the pain due to Fibro. Even if they don't present the classic symptoms that would get them diagnosed with Fibro, I believe they have it in different areas instead of the typical ones. And/or it can be deeper and hidden or it can be more subtle and less detectable.

Hi, guys. If you don't mind, I think a few clarifications are necessary here!

MG is all about weakness. We don't get enough acetylcholine and our muscles get weak. NO, we don't get pain as a primary symptom. However, we can get pain as a secondary symptom due to a muscle being too weak. If any of you have overdone things, you know your weak muscles can cramp up or spasm. Overuse of muscles causes pain and we MGers definitely quickly overuse our muscles.

Doctors DO NOT know the cause of fibromyalgia. They have some clues but have no definitive answers. It has not been proven to be an autoimmune disease or to be "related" to MG. Fibro may be more sensitive to chemical or hormonal or nutritional changes in the body.

http://www.mayoclinic.com/health/fib...SECTION=causes

There have been some studies lately that show large numbers of people with musculoskeletal pains and aches actually don't have enough vitamin D. It's a very common deficiency.

There's interesting information out there but, again, no clear answers.

http://www.fmaware.org/site/PageServ...e=fibromyalgia
http://www.fmaware.org/site/PageServ...yalgia_science

If a doctor is saying that all MGers get fibro or that the two are related somehow, they haven't done their research.

I don't have fibro. I can't say that I know how it feels. From the descriptions, it's not very fun to live with.

My Mom got fibro when she took hormone replacement therapy. She stopped the drug, then the fibro disappeared.

Exercise is good for anyone. My neuro said exercise in a pool is the best thing for MG. Fewer reps of those rubber band things helps to build strength and not overtax the muscles. Shorter bursts of activity followed by rest is good (with a fan blowing on you so you don't get hot!). Exercise in the summer is obviously harder than in the winter, even when you exercise inside. I get much worse over the summer months.

Like with MG, it's important to get a doctor (usually rheumatologist) who understands what they do know about fibro. The last thing you need is to be confused about what it means to have it.

Does this help or not?

Annie

I unfortunately have been diagnosed with both MG and fibromyalgia. I am constantly in pain and I have just been referred to See a physiatrist for rehabilitation.