Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


advertisement
Reply
 
Thread Tools Display Modes
Old 07-25-2007, 02:09 AM #1
redtail's Avatar
redtail redtail is offline
Member
 
Join Date: Jun 2007
Location: western australia
Posts: 894
15 yr Member
redtail redtail is offline
Member
redtail's Avatar
 
Join Date: Jun 2007
Location: western australia
Posts: 894
15 yr Member
Question 1st myasthenia gravis now fibromyalgia??

I was just wondering does anyone else who has MG have fibromyalgia.
I went and saw my neuro on Friday(always such a pleasure NOT)
He mentioned my arm and leg pain (as my neuro nurse whom I see had written to him, and had mentioned it in her letter) he asked if I still got it, I said yes, and then he went onto another subject. Today(wednesday) I got the letter he sends to my GP and a cc to me, in it he says "..... a background of generalised muscle ache and pain and fatigue, which is probably a form of fibromyalgia (relationship to MG)." and thats it nothing else, needles to say Im a little confused . I will talk to my neuro nurse, shes wonderful in looking after me and answering all my questions my neuro doesn't have time to answer. But I thought Id see if anyone else has these 2 diseases?!?!?!?
redtail is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
TheoRhetorical (02-19-2020)

advertisement
Old 07-25-2007, 07:30 AM #2
fibroblogger fibroblogger is offline
New Member
 
Join Date: Jul 2007
Posts: 1
15 yr Member
fibroblogger fibroblogger is offline
New Member
 
Join Date: Jul 2007
Posts: 1
15 yr Member
Smile MG and Fibromyalgia

Greetings,
Thanks so much for posting the question about the link between MG and Fibromyalgia. I was diagnosed with fibromyalgia about a year ago. In January I started having some blurred vision as well as muscle fatigue after I stopped taking prescribed medications. Because of your post I think I'll contact my neurologists. i have been having migraines for a number of years, however they recently stopped (not sure why). I have experienced significant brain fog - perhaps there is a connection that may mean that many patients should see their neurologist along with the rhumatologist.

tk
fibroblogger is offline   Reply With QuoteReply With Quote
Old 07-25-2007, 09:46 AM #3
rumpled's Avatar
rumpled rumpled is offline
Member
 
Join Date: Jun 2007
Location: NJ
Posts: 228
15 yr Member
rumpled rumpled is offline
Member
rumpled's Avatar
 
Join Date: Jun 2007
Location: NJ
Posts: 228
15 yr Member
Default

I am only in the process on getting diagnosed with MG but I was diagnosed with fibromyalgia many years ago.
Studys say that autoimmune disease comes in packs and they both are considered to be one. If my MG comes as a positive - which my neuro says yes but I want another opinion - it would be my fifth autoimmune disease.
But from my research, many docs do not consider that MG causes pain... while it seems that many with MG do seem to suffer with it. I have no idea if it is a separate issue - i.e. fibromyalgia - or is the aches associated with MG.
There are supposed to be specific pain points associated with fibromyalgia. So for a formal diagnosis, my rheumatologist documented the pain with those points and did blood tests. Hope this helps.
__________________
Cyclical Pituitary Cushing's, Addison's via bilateral adrenalectomy, Growth Hormone Deficent, Migraines, Trigeminal Neuralgia, Hashimoto's, Hypothyroid, Myasthenia Gravis?
rumpled is offline   Reply With QuoteReply With Quote
Old 07-25-2007, 10:03 PM #4
redtail's Avatar
redtail redtail is offline
Member
 
Join Date: Jun 2007
Location: western australia
Posts: 894
15 yr Member
redtail redtail is offline
Member
redtail's Avatar
 
Join Date: Jun 2007
Location: western australia
Posts: 894
15 yr Member
Default

thanx for your replies, am to exhuasted to reply properly now, but I will soon.
redtail is offline   Reply With QuoteReply With Quote
Old 07-26-2007, 10:40 PM #5
redtail's Avatar
redtail redtail is offline
Member
 
Join Date: Jun 2007
Location: western australia
Posts: 894
15 yr Member
redtail redtail is offline
Member
redtail's Avatar
 
Join Date: Jun 2007
Location: western australia
Posts: 894
15 yr Member
Default

Hi again
went and saw my GP today, on an unrelated topic, and mentioned the letter from the neuro, he said maybe he was waiting to see how things panned out over the next few months, which is strange because Ive had this pain for a few years now, so I guess a few more months wont hurt, much.
Will keep you informed of how things go.
redtail is offline   Reply With QuoteReply With Quote
Old 07-27-2007, 07:19 PM #6
bluestone bluestone is offline
Junior Member
 
Join Date: May 2007
Location: São Paulo, Brazil
Posts: 82
15 yr Member
bluestone bluestone is offline
Junior Member
 
Join Date: May 2007
Location: São Paulo, Brazil
Posts: 82
15 yr Member
Default

Hi Redtail
I have generalized myasthenia and fibromyalgia. 1st fibromyalgia, from the last 10 years. Started to treat MG last year.
Bluestone
bluestone is offline   Reply With QuoteReply With Quote
Old 08-22-2007, 09:08 AM #7
babsg29 babsg29 is offline
New Member
 
Join Date: Aug 2007
Posts: 4
15 yr Member
babsg29 babsg29 is offline
New Member
 
Join Date: Aug 2007
Posts: 4
15 yr Member
Default MG then Fibro

I had Mg for 2 yr then diag with fibro.......now on my 3rd yr with Mg and into my 2nd with fibro..........my RA said it is linked
babsg29 is offline   Reply With QuoteReply With Quote
Old 08-22-2007, 09:33 PM #8
loisba's Avatar
loisba loisba is offline
Member
 
Join Date: Sep 2006
Location: Tennessee
Posts: 518
15 yr Member
loisba loisba is offline
Member
loisba's Avatar
 
Join Date: Sep 2006
Location: Tennessee
Posts: 518
15 yr Member
Default

I've never been diagnosed with fibromyalgia, but I do have pains and aches with my MG. My original neuro, more than 30 years ago, who was an MG specialist, and ahead of his time, recognized pain as being a symptom of MG, but not of what he called classical MG. Most neuro's buy into the no pain with MG mentality, though in the very little research that has been done on it, many MGers report pain with their MG. Unfortunately, we usually don't get treated for it because we're not supposed to have it.
__________________
Lois
.
loisba is offline   Reply With QuoteReply With Quote
Old 08-23-2007, 01:42 AM #9
redtail's Avatar
redtail redtail is offline
Member
 
Join Date: Jun 2007
Location: western australia
Posts: 894
15 yr Member
redtail redtail is offline
Member
redtail's Avatar
 
Join Date: Jun 2007
Location: western australia
Posts: 894
15 yr Member
Default

I have just recently been back to my gp, because the pain was getting bad, and he informed me that the pain was due to lack of excercise, the muscles contracting and pulling on the joints!!(he did give me a prescription for pain killers, Im surprised he didn't send me off to see the psycologist as well, you know, its all in your head dear!!!!)he didn't even ask me if I excersised or how bad the pain was??, So has sent me off to the physio, whom I see tomorrow, shes a loverly lady, and Im sure will help me, and will tell me if she thinks its not what the doctor thinks it is. Sorry for venting
redtail is offline   Reply With QuoteReply With Quote
Old 08-24-2007, 08:34 AM #10
rumpled's Avatar
rumpled rumpled is offline
Member
 
Join Date: Jun 2007
Location: NJ
Posts: 228
15 yr Member
rumpled rumpled is offline
Member
rumpled's Avatar
 
Join Date: Jun 2007
Location: NJ
Posts: 228
15 yr Member
Default

I was doing physical therapy for my frozen shoulder and not able to to really make any "progress". I was using 3lb weights (pathetic!) and when I tried after a few months to move up to heavier weights, I was not able. Now my other shoulder is in bad shape and I am still using the 3lb weight. No one has been able to tell me how much exercise to do but I try to do some... but my lack of progress is what kinda gave the doctors a clue that something else was wrong.
How much exercise are MG'ers supposed to do?
__________________
Cyclical Pituitary Cushing's, Addison's via bilateral adrenalectomy, Growth Hormone Deficent, Migraines, Trigeminal Neuralgia, Hashimoto's, Hypothyroid, Myasthenia Gravis?
rumpled is offline   Reply With QuoteReply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Useful Sites for Myasthenia gravis Bobbi Myasthenia Gravis 6 05-31-2015 09:38 AM
Hello! I am sad about Myasthenia Gravis Manatee New Member Introductions 7 11-27-2011 05:53 AM
Acupuncture & Myasthenia Gravis littlekitten Myasthenia Gravis 2 06-13-2007 04:28 PM
Myasthenia Gravis Questions Manatee Myasthenia Gravis 7 04-18-2007 07:45 PM
Myasthenia Gravis Questions Manatee New Member Introductions 1 04-06-2007 09:06 PM


All times are GMT -5. The time now is 02:25 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.