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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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05-04-2017, 12:37 PM | #1 | ||
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Member
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Poetist, does the letter give you contact information? If so, you could call or write them if you have further questions. That might be a good idea.
Take care, Erin |
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05-05-2017, 05:24 AM | #2 | ||
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05-08-2017, 07:44 PM | #3 | ||
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Grand Magnate
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You have the right to know what exactly they did to you, and if it was with your permission or not. Also, they may be doing this extensive "study" in an attempt to cover themselves legally.
If this is an elaborate scam, someone went to a lot of trouble to create it! There should be a phone number on the paperwork you received. Call that number. Your doctor may not know a thing about it. Whatever is going on, you deserve to know what they are talking about. When was the isotope in question administered? How much? Only once? There are a lot of questions you should ask them. I hope you can get to the bottom of all of this! Annie |
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06-01-2017, 03:07 AM | #4 | ||
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Member
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Sorry to come back so late with an update, but I talked to the only doctor that I trust, my primary physician.
She said the Isotopes (product) were the dyes used in the MRIs and numerous nuclear tests that I have taken. They include the MRI, CAT, and a few others. When it came down to the medical study, my doctor said not to trust it. It's been three years, and they've stopped trying to illicit my participation. My doctor thinks that one is a scam, even though it was a very elaborate one. I'm talking about w/very expensive packaging, thick booklets, and glossy postcards with the HMO's logo. She said the flash drive theft was true, but since my credit is good, I'm good. Thanks all for your input in the matter. |
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"Thanks for this!" says: | AnnieB3 (06-03-2017) |
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