Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


advertisement
 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 05-25-2017, 07:21 PM #2
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
Smile

Duh.

And the doctors who did that fast taper could have killed you (via an adrenal crisis and MG crisis).

Dr. Weiss is highly regarded. I hope he came up with a way for you to have crisis treatment, as well as "regular" treatment. Did he give you a diagnostic letter for your files? You can ask him for that. Any time I have a significant diagnosis, I make sure that I have a statement about what the diagnosis is, how it was made, etc. That will make dealing with other doctors easier.

But Jane, your "story" is only beginning. Living with MG is the real battle. At least you now have a doctor in your corner.

All my best,
Annie
AnnieB3 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Jane1 (05-25-2017)
 

Tags
keeping, mestinon, methodically, slowly, weiss


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Where would we be today PamelaJune Survivors of Suicide 4 12-15-2017 10:29 PM
Today Ziggo Traumatic Brain Injury and Post Concussion Syndrome 12 03-23-2012 10:16 AM
today bad Cat_In_The_Hat_ Multiple Sclerosis 12 02-08-2008 07:29 AM
Today I saw... Riverwild The Stumble Inn 13 02-02-2008 11:56 AM


All times are GMT -5. The time now is 06:23 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.