Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


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Old 07-24-2017, 07:13 AM #11
hsahay hsahay is offline
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hsahay hsahay is offline
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Smile Feeling a lot better now

Hi Annie,

How are you doing now?

Thank you for your all the information and support. My blood tests came out positive with AcetylCholine Receptor antibodies at 1.7 nmol/L.

My doctor has been very helpful though and he gave me the go ahead for a vacation out of the country. So I had gone for a two-week holiday and everything worked out just fine. There were bouts of weakness here and there but that was nothing unexpected and nothing severe either. I was able to walk around all day, climb stairs, drive and do all regular activities. I even did snorkeling and scuba diving. I guess the meds are working well. I feel so relieved now.

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AnnieB3 (07-28-2017), ErinBear (07-24-2017), rach73 (07-24-2017)

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Old 07-26-2017, 05:40 PM #12
patrick123 patrick123 is offline
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patrick123 patrick123 is offline
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I've been symptom free for about a year. Mestinon 3x60mg/day. D3 12K IUs/day. Serum 25-Hydroxy Vitamin D 90 ng/ml. Serum calcium, and PTH levels within normal range.
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"Thanks for this!" says:
AnnieB3 (07-28-2017)
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