I would love to know how others are managing work. Do you find you are able to work full time? part time? not at all? My health situation overall is very complex, with many clear reasons for severe fatigue, not just MG. I’ve found that, since my thymectomy and diagnosis with MG, attempts to come back to work full-time have failed, exacerbating my symptoms. Working more than half time is now impossible for me.

As far as I can see, I am facing only bad choices. As I’ve written in previous posts, I’m applying for Long-term Disability benefits. However, if I work any less than half-time, my employer would bill me for their part of my benefits as well as mine. My plan, as it evolved over the last two months, has been to work half-time and hope to get the LTD payments that would fill the gap between half-time and full-time pay. But, given how much my symptoms have worsened just this week, I’m now worried I might not be able to work even half-time.

So I am anxious to hear how others are doing with working.