Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.

 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 06-28-2017, 08:29 PM #5
Snoel Snoel is offline
Junior Member
 
Join Date: Oct 2015
Posts: 78
8 yr Member
Snoel Snoel is offline
Junior Member
 
Join Date: Oct 2015
Posts: 78
8 yr Member
Default

I've been back to work now since Feb 2016, I started progressively and now working Mon to Friday 8am to 3pm 30hrs/week, for me that alone is therapy on its own, just the fact of being with people and freinds helps me forget about a lot of things...I stayed home for 10 months and thaught I was going to go CRAZY! to much time to think...

I'm on a heavy dose of Mestinon every 3hrs and Imuran once a day, Mestinon Timespan at bedtime and IVIg every 3 weeks, it keeps me a float so far.

I don't do any or very little physical work it's all mental, computer, email and lots of phone calls which does get to me if I over do things "talking" I'm having a lot of bulbur symptoms which really affects my speech, my swallowing is good but all my fascial muscles, mouth, cheeks, tung and lips get numb... I take time outs and I get back on track but as my day goes on after lunch things can get really bad so when 3 pm comes I'm ready to go home and have some downtime, sometimes i take a nap for an hour or so. I feel that 6hrs is plenty for my condition, it took me a long time to be able to get to this point and hopefully hang on, I listen to.my body I'd like to be able to do more I use to work 60hrs a week, I'm enjoying what I'm doing and my boss is ok with it so far.

All I can say is that I encourage all you MG'ers to keep busy at doing something you like at your pace it really helps to.make you forget about things and gives you a sense of acceptance or contributing to something constructive by day's end...it's really helped me emotionally.
Snoel is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
AnnieB3 (06-28-2017), ErinBear (06-29-2017)
 

Tags
benefits, half-time, i’m, i’ve, time


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Continuing assessments? Lindyloowho1234 Peripheral Neuropathy 5 06-03-2016 07:40 AM
Continuing the partnership MuonOne ALS News & Research 1 01-22-2016 10:50 AM
Reading continuing PMCPMC Myasthenia Gravis 2 11-22-2009 05:13 PM


All times are GMT -5. The time now is 10:48 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.