Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


advertisement
Reply
 
Thread Tools Display Modes
Old 07-02-2017, 12:03 PM #1
Texasron Texasron is offline
Junior Member
 
Join Date: Jun 2017
Location: Austin TX
Posts: 9
5 yr Member
Texasron Texasron is offline
Junior Member
 
Join Date: Jun 2017
Location: Austin TX
Posts: 9
5 yr Member
Angry Driving

I have had generalized MG symptoms for over a month, waiting to see MG specialist at end of July. Wife is unable to drive. What is your experience?
Texasron is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ErinBear (07-02-2017)

advertisement
Old 07-02-2017, 06:33 PM #2
ErinBear ErinBear is offline
Member
 
Join Date: Jul 2014
Location: California
Posts: 162
8 yr Member
ErinBear ErinBear is offline
Member
 
Join Date: Jul 2014
Location: California
Posts: 162
8 yr Member
Default

Dear Texasron,

I'm so sorry to hear about your difficulties with driving. I am not able to drive, either. I am not married and I do no have family, so it is a challenge. Occasionally, I can get a ride with friends, but generally I have to take our local bus to medical appointments and for errands, which also is difficult. Our area has a paratransit system, which will take you door-to-door if you reserve a ride 24 hours in advance. You have to apply for this and have a doctor's approval. There is also a fee to use it. Sometimes I use this, or even call a taxi when there is a more urgent need. Our local transit agency will reimburse costs for using a taxi up to 80%, but only for a limited number of times in a month, so I don't use it very often. This, too, is a program for which seniors and disabled individuals have to apply, and it requires doctor's approval. But finding out what the resources are in your area can be very helpful if you are not able to drive. Each area is different.

Last but not least, if you attend a place of worship, like a church or a synagogue, sometimes they will help with rides. My church does, and occasionally I can get a ride to a medical appointment that way. When it works, that's really wonderful, because it is door-to-door and of course the friends who offer a ride from church are always very kind and helpful.

Sending lots of good wishes your way. I hope the doctor will be able to help you at your appointment in July. That is a long wait. Meanwhile, it might be worth contacting the doctor's office to see if they have a cancellation list. Sometimes they do, and that way you can get in more quickly if your schedule is flexible.

Take care,
Erin
ErinBear is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
pingpongman (07-02-2017)
Reply

Tags
drive, experience, july, unable, wife

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
driving? justbreathe Traumatic Brain Injury and Post Concussion Syndrome 3 09-03-2013 06:49 AM
driving brmr19 Thoracic Outlet Syndrome 7 07-15-2012 03:36 PM
Driving Raglet Peripheral Neuropathy 0 10-17-2010 06:47 PM
driving momzpeachy Thoracic Outlet Syndrome 10 03-30-2007 05:54 PM


All times are GMT -5. The time now is 01:53 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.