So, am I understanding that there would be none of these antibodies in my blood at all if I didn't have early stage or ocular only MG? Mine fall into the negative range but they are present.

Binding. <.03 in a given negative range of 0.00 to 0.24 nmol/L

Modulating <12% in a given negative range of 0 to 20%

Blocking 23% in a given negative range of 0 to 25%

I'm truly confused.

SLee, I know, the lab ranges almost seem arbitrary! Antibody results fluctuate through the years. A good neuro will redo the results in a few months or redo them now and send them off to Mayo (who invented the test). Every lab is different. They have different ways they run the test, therefore different ranges.

Have you seen a neurologist? Do they believe you have MG? Anything else you'd like to share? If so, maybe do a new post so that other members can see it and help you!

Annie

Thanks AnnieB3! I am under the care of a neuro. I saw my GP about the eye droop and he said it was a symptom of hypothyroidism for which I take synthroid. Sent me to my ophthalmologist who I see for chronic dry eye. Before I got to see her my right eye began to cross toward the center randomly. So eye doc says nope, this looks like MG. Go see your neuro. I had mentioned it to my neuro in December and he didn't seem concerned but with the call from her he ordered bloodwork. I got the results through the patient portal but he can't see me til late September. So...just trying to educate myself a bit so I can ask the correct questions.

I have so much going on from so many things I don't know where to post. I have an intro post, I jumped onto this MG thread and another in general regarding a movement disorder.

SLee, The difference between a droopy eyelid from a thyroid condition and MG is that the eyelid issue in MG is FATIGABLE. Also, you can pull up on a dominantly droopy eyelid in MG for a few seconds, and that one will go up while the other one goes down. That is called "enhanced ptosis."

If you have double vision, close one eye to see if DV goes away. If so, that is called "binocular double vision," which is indicative of MG.

You may have more than one condition. A lot of people do. Have you been tested for lupus? B12 and D deficiencies? You may need to see more than one specialist to figure all of this out.

If you haven't already, do a journal of when symptoms began, what they are, and what makes them worse/better.

I really hope you find help soon!

Annie

Thanks for the response. The right eye droops randomly, especially when I'm tired but the other eye doesn't droop when I lift the droopy one. A cold cloth usually will make it lift back up. When I'm tired in the extreme, they both droop. Usually a nap helps.

I used to freak out when my right eye would wander until I read to close the wandering eye. Now I just close my right eye and keep peeking out until it goes back to normal. My daughter finally got a pic of it happening. I've suspected MS for quite awhile, Lupus has been suggested on many occasions but the bloodwork, biopsies and other tests seem to indicate otherwise.

I've been diagnosed with degenerative disc disease, fibromyalgia and hypothyroidism and Vertigo. I have symptoms of lupus, ms and mg and POTS but no diagnosis. I do keep a journal and photos of all symptoms along with what I'm doing when it happens.

Hi,
I did the ACETYLCHOLINE RECEPTOR MODULATING ANTIBODY
(% Inhibition) and my result was 4. It says Reference Range: <32% INHIBITION.

Does anyone know what these results mean? My doctor dropped me suddenly and I have no way to understand the results.