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Old 07-26-2017, 09:44 AM #1
patrick123 patrick123 is offline
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Default Monarsen...
Hello fellow Mgers... Just came across this and would like to know if anyone has additional info about this med. BEST TO ALL, patrick123. New treatments for myasthenia: a focus on antisense oligonucleotides
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Old 07-28-2017, 01:11 AM #2
AnnieB3 AnnieB3 is offline
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Patrick,

Trials were suspended. Who knows why. The drug had great promise. Was supposed to last 24 hours without the side effects that Mestinon can have.

EN 11 - AdisInsight

I know that there are others working on this particular type of therapy. Check in on PubMed once and a while, for they have the latest on that.

Annie
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Old 07-28-2017, 08:11 AM #3
patrick123 patrick123 is offline
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Originally Posted by AnnieB3 View Post
Patrick,

Trials were suspended. Who knows why. The drug had great promise. Was supposed to last 24 hours without the side effects that Mestinon can have.

EN 11 - AdisInsight

I know that there are others working on this particular type of therapy. Check in on PubMed once and a while, for they have the latest on that.

Annie
Drat! Sorry to hear trials were suspended. Thanks very much for your input... Patrick
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Old 07-28-2017, 06:02 PM #4
AnnieB3 AnnieB3 is offline
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Rare diseases don't have as much money poured at them than better known ones, unfortunately. But there are scientists out there who are determined to find better treatments. Keep the faith.

Annie
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Old 07-29-2017, 11:43 AM #5
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Thankfully, I do quite well on Mestinon. Was thinking of others for whom it may not be very effective. Always want to see additional options for treating this, "our blessing."
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