Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


advertisement
Reply
 
Thread Tools Display Modes
Old 08-03-2017, 11:16 AM #1
MG_Kat33 MG_Kat33 is offline
Junior Member
 
Join Date: Jun 2017
Location: Las Vegas, NV
Posts: 24
5 yr Member
MG_Kat33 MG_Kat33 is offline
Junior Member
 
Join Date: Jun 2017
Location: Las Vegas, NV
Posts: 24
5 yr Member
Default What do you do...

When you feel sickly but don't technically have a fever or obvious cold signs?

I feel feverish because my temp is elevated above my personal normal, but it is below 99. I also have the general malaise, shakiness and fatigue that comes with infection, but not any other respiratory or throat symptoms.

Do I just try to rest it off, do I contact my brand new pcp office that doesn't know me from Adam? What would/could they do anyway?

Thanks for any advice and your suppirt while I continue to wait for a referral to a new neuro.
MG_Kat33 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ErinBear (08-04-2017)
Old 08-03-2017, 11:28 AM #2
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
Heart

Look over your entire body. Is there an infected cut? Might you have the beginnings of toxic shock syndrome? Have you been bitten by some little critter? Please do not take those symptoms lightly! I would go to urgent care and be seen right away, if it were me. I've known too many situations that become worse that are seemingly benign.

There are things that doctors notice that we might not. The best place for you is with a doctor right now. And anything else going on will make MG worse.

I hope you'll be okay!


Annie
AnnieB3 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ErinBear (08-04-2017), MG_Kat33 (08-04-2017)
Old 08-04-2017, 12:46 AM #3
ErinBear ErinBear is offline
Member
 
Join Date: Jul 2014
Location: California
Posts: 162
10 yr Member
ErinBear ErinBear is offline
Member
 
Join Date: Jul 2014
Location: California
Posts: 162
10 yr Member
Default

Hi MG_Kat33,

Did you arrange an appointment with your PCP or maybe go to urgent care? I hope you will keep us posted about how things are going for you.

I live in California, one state away from you. We've been having a heat wave, and I suspect you might be having experiencing it also. This might be affecting your MG. While you are waiting to see your doctor, make sure your home is cool enough for you. Limit the amount of time you spend outdoors in the heat - if you have to go out, try to do things in the morning when it is cooler. Rest as much as you can. Make sure you stay well-hydrated. I rest with my back against ice-packs when I am feeling too warm, and it helps. You can also wet down your hair, for instance, and it can help to cool you down as it evaporates. I hope you start feeling better soon!

Take care,
Erin
ErinBear is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
AnnieB3 (08-04-2017), MG_Kat33 (08-04-2017)
Old 08-04-2017, 01:02 AM #4
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
Smile

Yeah, you could have dehydration over heat exhaustion. But only a doctor can tell you that for sure! Good point, Erin.

Annie
AnnieB3 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ErinBear (08-04-2017)
Old 08-04-2017, 02:26 PM #5
MG_Kat33 MG_Kat33 is offline
Junior Member
 
Join Date: Jun 2017
Location: Las Vegas, NV
Posts: 24
5 yr Member
MG_Kat33 MG_Kat33 is offline
Junior Member
 
Join Date: Jun 2017
Location: Las Vegas, NV
Posts: 24
5 yr Member
Default

Thanks. I drink 2 28oz water bottles plus at least8oz for breakfast, lunch and dinner, so I don't think its dehydration. I stay inside, mostly, too

Tried calling my new pcp but had to leave a message and of course nobody responded. Going to go to an urgent care this afternoon and see what they say. It's hard because I have little to go on other than "I feel hot to myself, have fatigue and generally feel crummy. Can you help me?"
MG_Kat33 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
AnnieB3 (08-04-2017)
Old 08-04-2017, 05:46 PM #6
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
Smile

Kat, Are you one of those people who has to know the end of the movie before watching it?!

I've gone in many times with symptoms that aren't necessarily clear. That's why doctors went through 8+ years of schooling! They can often come to conclusions that we can't.

You aren't on Pred, right? Your symptoms also remind me of someone with lupus or Addison's disease. Or lots of other things! Be on the watch for any other symptoms.

I hope they can figure out what is going on!


Annie
AnnieB3 is offline   Reply With QuoteReply With Quote
Old 08-06-2017, 08:27 PM #7
MG_Kat33 MG_Kat33 is offline
Junior Member
 
Join Date: Jun 2017
Location: Las Vegas, NV
Posts: 24
5 yr Member
MG_Kat33 MG_Kat33 is offline
Junior Member
 
Join Date: Jun 2017
Location: Las Vegas, NV
Posts: 24
5 yr Member
Default

Update: probably a mix of psychosomatic issues and a mild virus. Went to Urgent Care, saw a PA (bless) and they were kind enough to take my immunosuppression seriously and run blood tests even though I didn't have a fever, cough, congestion, etc.

Everything came back in normal range... which is highly suspicious. My WBC SHOULD be elevated because I am on prednisone. So I suspect a mild viral infection plus anxiety and depression.

Everything else was within normal ranges and I have been feeling better yesterday and today. I had already rested all day Thursday, most of the afternoon and evening Friday and was pounding vitamin C and zinc, and always take a lot of vitamin D anyway. Every week is a roller coaster, recently. I'm not sure anyone without a chronic illness can understand how long a month can be, heh.

Last edited by MG_Kat33; 08-06-2017 at 09:13 PM.
MG_Kat33 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
AnnieB3 (08-08-2017), ErinBear (08-06-2017)
Reply

Tags
contact, feel, office, pcp, rest


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off



All times are GMT -5. The time now is 06:53 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.