A little background...I'm bring treated with Mestinon but we are still waiting for the myasthenia panel. They estimate it won't be done until 9/19 and it was drawn 8/20. I don't see the neurologist again until 9/15. While I'm glad the Mestinon helps, I feel we need to get on top of the disease process. I'm still struggling to get through my day with generalized weakness and I tire very easily. I would like to have the lab work redrawn and sent somewhere else. I put in an appointment request for Mayo (we took one of our children there a few years ago and he was diagnosed with an unrelated condition and we had great experience), so I would like to go there for this probable MG. Another option would be Washington University in St. Louis which is affiliated with Barnes Hospital. From my research, they both seem very reputable when it comes to treating MG and they have a lot of experience with thymectomies.
Does anyone have any experience with either of these places?

Thanks!

LBee