Go Back   NeuroTalk Support Groups > >

Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.

MG with Negative Labs

Reply
 
Thread Tools Display Modes
Old 09-10-2017, 10:57 AM   #1
Magnolia~
New Member
 
Join Date: Sep 2017
Posts: 3
Default MG with Negative Labs

Hi,

I'm new here. It's nice to meet you all.

I've had many neurological and autoimmune problems but still have not gotten a diagnosis. (I know people here don't give medical advice and cannot diagnose--I'm not looking for that here.)

Some of the symptoms calmed down, but I am still having breathing problems and overall weakness/fatigue among other things. Most doctors seem to minimize my complaints, so I'm looking into things myself.

My question for the group is-does anyone here have MG but who had/has negative labs? At the ER, the doctor did a MG panel, and this came back negative. However, the lab result report states "a negative result does not exclude autoimmune myasthenia gravis or thymoma."

Thanks
Magnolia~ is offline   Reply With Quote
"Thanks for this!" says:
AnnieB3 (09-18-2017)
Old 09-10-2017, 07:38 PM   #2
AnnieB3
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,272
Smile

Hi, Magnolia! I think that patients tossing around ideas and what their symptoms are is why forums like this are so valuable. No one is trying to be a doctor here; only trying to help others figure out what symptoms may belong to MG and which ones might not.

MG is all about fatigable weakness, that is worse with activity and relatively better with rest and drugs. Does that describe your weakness?

Did they run the MuSK antibody test? Just recently, the LRP4 test has become available as well.

Do you have your test results? Believe it or not, some doctors do not tell patients the exact readings! If you don't have them, get them!

Has an internist evaluated you for thyroid problems? B12 or D deficiency? Any other general tests such as a metabolic panel and CBC? Any signs of endocrine diseases?

How long have you had symptoms? Sometimes antibody tests aren't positive right away.

If you feel like it, you could describe more about what is going on, when it began, etc.

Whatever is going on, you should see a MG expert to rule MG in or out. I hope you have answers soon.

Annie
AnnieB3 is offline   Reply With Quote
"Thanks for this!" says:
Magnolia~ (08-20-2018)
Old 09-11-2017, 11:56 AM   #3
schavarria
Junior Member
 
Join Date: May 2011
Location: Champaign, IL
Posts: 47
Default

Hi Magnolia,

In 2011 I was diagnosed with mild-moderate MG based solely on my symptoms (fatigable weakness, difficulty chewing/talking, all of which improve with rest) and a borderline single fiber EMG test. All other tests were negative, and repeat antibody tests over the years have also been negative. I also don't really have any ocular manifestation, and Mestinon doesn't seem to help. Just wanted you to know that there's someone out there who doesn't have many test results to go along with the diagnosis, but in my humble opinion, I have MG.

Best wishes!
Susan
schavarria is offline   Reply With Quote
"Thanks for this!" says:
AnnieB3 (09-18-2017), Magnolia~ (08-20-2018)
Old 10-22-2017, 04:59 PM   #4
TÉLIA AGUIAR
Newly Joined
 
Join Date: Oct 2017
Posts: 1
Default

Quote:
Originally Posted by schavarria View Post
Hi Magnolia,

In 2011 I was diagnosed with mild-moderate MG based solely on my symptoms (fatigable weakness, difficulty chewing/talking, all of which improve with rest) and a borderline single fiber EMG test. All other tests were negative, and repeat antibody tests over the years have also been negative. I also don't really have any ocular manifestation, and Mestinon doesn't seem to help. Just wanted you to know that there's someone out there who doesn't have many test results to go along with the diagnosis, but in my humble opinion, I have MG.

Best wishes!
Susan
Hi magnolia

I have generalized myasthenia gravis with diagnosis only in single fiber electroneuromyography.
All other blood tests gave negative: acetylcholine, musk.
I already used all the drugs of the medical protocol in Brazil and I did not improve. I am hoping to come up with a new drug for refractory myasthenia. I would like to know more information of LRP4 test Sorry for the errors I'm using the goole translator.
TÉLIA AGUIAR is offline   Reply With Quote
"Thanks for this!" says:
Magnolia~ (08-20-2018)
Reply

Tags
autoimmune, doctors, labs, negative, result

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Negative EMG, Negative AChR, but mestinon works winic1 Myasthenia Gravis 0 01-13-2017 04:28 PM
Labs hopeful Peripheral Neuropathy 11 08-21-2014 12:47 PM
celiac labs help rwoo Gluten Sensitivity / Celiac Disease 1 09-05-2013 06:02 AM
Labs hopeful Peripheral Neuropathy 4 01-11-2012 06:53 PM
Labs Back Mere Peripheral Neuropathy 6 03-04-2010 09:09 PM


All times are GMT -5. The time now is 02:01 AM.
Brought to you by the fine folks who publish mental health and psychology information at Psych CentralMental Health Forums

The material on this site is for informational purposes only, and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider. Always consult your doctor before trying anything you read here.


Powered by vBulletin • Copyright ©2000 - 2018, Jelsoft Enterprises Ltd.
Search Engine Optimisation provided by DragonByte SEO v2.0.31 (Lite) - vBulletin Mods & Addons Copyright © 2018 DragonByte Technologies Ltd.

All posts copyright their original authors • Community GuidelinesTerms of UsePrivacy Policy