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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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09-20-2017, 01:45 PM | #6 | ||
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Newly Joined
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hi i'm AK,
last 10 months have been tragically comedic. 1. first sign of MG appeared in Mar 2016, ptosis of left eye, fatigue wo cause. Usually went away n no pain so i didn't do anything about it. 2. secondly in July 2016 went to Mayo bc i felt like i was getting weaker, despite regularly exercising and improved diet. if i pushed myself breathing was incredibly difficult, more than being out of shape. i was actually doing less training reps than when i iniated training. 3. thirdly Aug 2016.i felt like i wasn't seeing as well. 4. double vision, blurriness, began in Oct 2016. ophthalmologist only found mild near sightedness n glasses were for driving at night. 5. Feb 2017 fatiguable weakness cont'd n vision loss, 2nd opinion on eyes gave a more complete pic for my eyes, homonynymous hemaniopsia =85% chance brain tumor or lesion affecting optic nerve. 6. brain MRI Mar 2017 - follow up with neurologist in May my brain is fine other than i'm a little left of center (mr shakespeare too!) 7. Jun 14, 2017 follow up with ophthalmologist states 2 things clearly 1. he can't improve on my vision as it continues to deteriorate with glasses. 2. opines best guess is MG. 8. as i inform myself about MG it fits 3things i couldn't connect. A. General feeling of getting weaker which was y i went to Mayo initially. B. Explained my declining vision. C. Explained what i now understand as MG crisis i experienced on two occasions. 1. Feb 2017 after 30 min warm up for a TT tournament i sat for 30 n during that @test" i collapsed from weakness, labored breathing felt like a 100 lb body suit was put on me. 2. Apr 2017 it repeated in a similar fashion, more intense, i should have went to ER, had no idea what was happening. i feel lucky to have survived. i have found ice helps immensely if i struggle to breathe, a bag of ice on the chest will keep the diagphragm from overheating n the collagen won't break down. more to the story later. peace! |
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