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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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09-20-2017, 08:44 PM | #1 | |||
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Thanks Annie. I have about 5 different doctors. All who treated my wife. I love her oncologist. I have scan Friday and see him next week. Not sure if he will use chemo to slow all this down. Tried to read up on using chemo on MG patients but found nothing.
Neurologist are a weird bunch. I had a team of 6 at the hospital and they couldn't agree on treatment. One even said my tremors were caused by the tiny cancer tumor in my lung. Even I knew better. The lead dr stood there and stared at me for about 30 minutes. He was a nut. Thanks again Mike |
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"Thanks for this!" says: | AnnieB3 (09-26-2017) |
09-25-2017, 10:28 AM | #2 | ||
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Quote:
I am on chemo and have MG. No problem with MG while on chemo so far. My Neuro says he thinks the chemo helps knock down the MG. I still take lots of Mestinon and 100 mg Imuran a day. Also go to Dermatoligist on a regular basis. No problem so far. Hope to help FREDH |
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"Thanks for this!" says: | AnnieB3 (09-26-2017) |
09-25-2017, 11:14 AM | #3 | |||
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Thanks Fred, I go to Dermatoligist every 3-6 months. I go to my oncolgist tomorrow to check on my lung cancer interest to see what he has to say about this skin cancer outbreak. Glad to hear chemo doesn't bother your MG.
Thanks again Mike |
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10-08-2017, 08:29 PM | #4 | ||
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Grand Magnate
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Mike, Any new news? I hope it's all good!
Annie |
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10-08-2017, 09:27 PM | #5 | |||
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Member
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They removed the spot but report said it was squam but first report said melonoma. We are checking on what it was really was. It did set my MG back. The surgeon was a real JERK. Took 11 staples to close it. See bunch of dr's in next 2 weeks.
Mike |
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"Thanks for this!" says: | AnnieB3 (11-23-2017) |
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