122 views, just one response. Do I need to post elsewhere?

dhackle, I believe quality is far more important than quantity! You received one of the best responses, from someone who has been through a lot with MG. More views than responses is typical of every forum.

There are past posts here regarding this topic as well. You can do a search of this forum to find them.

I don't have personal experience with Gamunex, so I can't tell you more. I do know that a lot of paperwork is involved in having IVIG. Since a few years ago, they are defining IVIG as used on a regular basis only for some conditions (MG is not one of them). IVIG is used when a patient is having an exacerbation or nearing a crisis (at least that is how the insurance companies define the use). Some people are lucky enough to have IVIG on a regular basis.

Call your insurance company and see what they need to have it covered. Then speak to your neurologist and let them know what is needed. Cover all your bases and hope for the best. That's the reality we are in now.

I hope you can have the treatment covered!

Annie

Annie..thank you. Very good info. Doing so now. Waiting to hear.

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