FAQ/Help |
Calendar |
Search |
Today's Posts |
|
Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
Reply |
|
Thread Tools | Display Modes |
|
10-14-2017, 06:06 PM | #1 | ||
|
|||
Junior Member
|
Hi all. I am refractory too and just had 3 of 4 infusions of Rituxan. makes me really sick for a couple of days, but I am feeling serious relief from my symptoms.
I have had MG for at least 25 years, and was actually treated for Lyme disease at one point. Finally, a neurologist found a 2.2 pound thymoma crushing my left lung and laying against my heart. I felt pretty bad all the time. After the surgery though, everything went to hell and my condition became severely worse over the next several months. It's been a slow battle of ineffective drugs, but this Rituxan seems to be working for now. I just don't know how long it will last. Good luck to all of you! |
||
Reply With Quote |
10-14-2017, 06:17 PM | #2 | ||
|
|||
Member
|
DynaGuy, Sorry you had side effects. I only had facial flushing the mornings after infusions and would sleep REALLY well for a few days. Never felt bad.
My improvements continued for months after the second infusion. Hopefully you will also have sustained relief, too. |
||
Reply With Quote |
11-24-2017, 06:27 PM | #3 | ||
|
|||
Junior Member
|
Thanks. Things have been pretty good.
If I could just stop getting thrush, or burning tongue, I would be really happy! Stuff hurts. Otherwise I've been really good since the infusions. |
||
Reply With Quote |
"Thanks for this!" says: | pingpongman (11-24-2017) |
11-24-2017, 07:23 PM | #4 | |||
|
||||
Member
|
I have had that since I was in the Hospital. If you find what helps you please post.
Mike |
|||
Reply With Quote |
Reply |
|
|
Similar Threads | ||||
Thread | Forum | |||
Rituxan anyone? | Myasthenia Gravis | |||
Rituxan? | Myasthenia Gravis | |||
Rituxan? | Myasthenia Gravis | |||
Rituxan for MG | Myasthenia Gravis | |||
Rituxan | Multiple Sclerosis |