Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


advertisement
Reply
 
Thread Tools Display Modes
Old 01-25-2018, 09:29 AM #1
Jeff_MG Jeff_MG is offline
Junior Member
 
Join Date: Apr 2017
Posts: 8
5 yr Member
Jeff_MG Jeff_MG is offline
Junior Member
 
Join Date: Apr 2017
Posts: 8
5 yr Member
Default MG update aka thymectomy good

Briefly:
53 yo male at time of initial symptoms.
Developed occular symptoms Aug/Sept 2014, progressed to general mg in weeks.
Diagnosed Nov/Dec 2014.
Prescribed Mestinon 60 mg 2x per day (180 mg daily).
Blood test positive for acetylcholine receptor antibody.
Did my research, decided on thymectomy, my neurologist agrees.
Thymectomy performed May 2015.


Today, Jan 2018:

Daily Mestinon dosage 60-120 mg.
Symptom free without taking meds, but being a good patient and continuing to take my Mestinon. Remission soon, hopefully.
Jeff_MG is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
FREDH (01-29-2018), MG_Kat33 (02-10-2018)

advertisement
Old 04-15-2019, 09:27 AM #2
Jeff_MG Jeff_MG is offline
Junior Member
 
Join Date: Apr 2017
Posts: 8
5 yr Member
Jeff_MG Jeff_MG is offline
Junior Member
 
Join Date: Apr 2017
Posts: 8
5 yr Member
Default Update.

Saw my neuro last month. I've been mestinon and MG symptom free since 1/1/19. Doc says I'm cured. Cured and not in remission because of the thymectomy.
Jeff_MG is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
MattyToo (04-16-2019)
Old 12-08-2019, 07:49 PM #3
remremrem remremrem is offline
Newly Joined
 
Join Date: Nov 2019
Location: Garnet Lake, NY
Posts: 2
3 yr Member
remremrem remremrem is offline
Newly Joined
 
Join Date: Nov 2019
Location: Garnet Lake, NY
Posts: 2
3 yr Member
Default Age problem?

That is great. I'm would like to know if there is an age limit for having a thymectomy? Does anyone know?
remremrem is offline   Reply With QuoteReply With Quote
Old 12-09-2019, 02:46 AM #4
kiwi33's Avatar
kiwi33 kiwi33 is offline
Grand Magnate
 
Join Date: Jan 2015
Location: Sydney, Australia.
Posts: 3,093
8 yr Member
kiwi33 kiwi33 is offline
Grand Magnate
kiwi33's Avatar
 
Join Date: Jan 2015
Location: Sydney, Australia.
Posts: 3,093
8 yr Member
Default

Hi remremrem

Welcome to NeuroTalk .

Usually people with MG who are 60 or younger can be considered for a thymectomy. This information might help you.

Thymectomy - Myasthenia Gravis News.

All the best.
__________________
Knowledge is power.
kiwi33 is offline   Reply With QuoteReply With Quote
Old 12-09-2019, 07:19 AM #5
wbdolphin wbdolphin is offline
Junior Member
 
Join Date: May 2012
Location: Orlando
Posts: 58
10 yr Member
wbdolphin wbdolphin is offline
Junior Member
 
Join Date: May 2012
Location: Orlando
Posts: 58
10 yr Member
Default Thymectomy age

The medical field used to use 60 years old as the absolute cut off age for considering thymectomies. Now, many surgeons take other things into consideration before they deny surgery - size of the thymus, severity of symptoms, age at onset of symptoms. For those that are looking into it, it might be worth meeting with several doctors for several medical opinions.
wbdolphin is offline   Reply With QuoteReply With Quote
Reply

Tags
daily, mestinon, performed, symptoms, thymectomy

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Update- not so good Healthgirl Peripheral Neuropathy 3 06-13-2015 07:07 PM
4 1/2 months post-thymectomy update (and a little grumbling) simplelife15 Myasthenia Gravis 1 01-08-2015 02:33 AM
Post-thymectomy update simplelife15 Myasthenia Gravis 2 10-05-2014 09:16 AM
Another *Good* PT Update! heybro Thoracic Outlet Syndrome 5 06-18-2013 01:29 AM
Update on thymectomy Ravenred Myasthenia Gravis 10 01-23-2012 01:41 PM


All times are GMT -5. The time now is 11:45 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.