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Atypical MG ?

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Old 03-16-2018, 07:53 AM   #11
Dechi
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Join Date: Mar 2018
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Hello Annie and thanks for caring !

Noone has told me that I have COPD. My ME specialist who ordered it didn’t call me back, so I assumed it was normal. My regular doctor said if was normal. I’m the one thinking it’s not. At the end of april, I see my specialist and will ask him about that and also talk about the possibility of MG. He is pretty fast to refer his patients so I’m sure he will if he thinks it’s even a remote possibility.

I don’t have any oedema on my body. Muscular soreness, yes. I get massotherapy and the last months, I started not being able to tolerate touch. I figured this was the fibro part coming out.

ME/CFS I’m very knowledgeable about. I’m part of multiple support groups and try to be aware of all clinicial research and discoveries. I’m a little bit like am ME Annie , lol !

Although I think my diagnosis is right, I always had some doubt in the back of my mind that there might be something else going on, because of the constant muscular weakness.

I won’t give up, I’m used to that. It took me a while to get diagnosed for ME and I owe it all to my persistance. These things take time, unfortunately, but it will happen. Maybe I don’t have MG and it’s just my ME and fibro flaring up, but at least I’ll know for sure.

I will update this thread when I have any development.
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