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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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03-19-2018, 09:10 AM | #1 | |||
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Has anyone had ivig and radiation at the same time? For example ivig on Monday then Radiation on Tuesday? Did it cause any problems?
Mike |
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"Thanks for this!" says: | AnnieB3 (03-24-2018) |
03-19-2018, 03:52 PM | #2 | ||
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I can't see how it would. Hydration is important, of course, with both therapies. Good luck!
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"Thanks for this!" says: | AnnieB3 (03-24-2018) |
03-19-2018, 11:15 PM | #3 | |||
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I had 28 days of radiation and continued my weekly IVIG through the whole time. That meant I had IVIG and radiation every Friday for 4 weeks. No problems!
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03-20-2018, 03:48 PM | #4 | |||
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Thanks so much for your responses makes me feel better.
Mike |
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"Thanks for this!" says: | AnnieB3 (03-24-2018) |
03-24-2018, 11:05 AM | #5 | ||
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Grand Magnate
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I'm sure you'll be fine, Mike! Good luck with the radiation. Don't forget that B12 will help cells, and the cancer, heal!
Annie |
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"Thanks for this!" says: | pingpongman (03-24-2018) |
03-24-2018, 06:13 PM | #6 | |||
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We decided to wait on radiation. My MG is so bad. I don't think IVIG is going to help. Oh well gotta try something.
Mike |
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"Thanks for this!" says: | AnnieB3 (04-04-2018) |
03-24-2018, 08:35 PM | #7 | ||
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Grand Magnate
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I'm so sorry to hear that, Mike! Do you think there could be anything else making MG worse (besides having multiple antibodies)? Have you had your thyroid or adrenal function tested lately?
There really isn't a great treatment for MG, without some risk of serious side effects. We could all use some ET intervention with healing therapies about now!!! Annie |
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03-24-2018, 10:07 PM | #8 | |||
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yes my gp makes those checks on a regular basis. my neuro is talking about taking me off cellcept and trying one of these new drugs. i'm open to anything at this point. i'm so thankful i haven't had breathing problems.
mike |
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"Thanks for this!" says: | AnnieB3 (04-04-2018) |
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