Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


advertisement
 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 01-03-2019, 08:53 PM #8
winic1 winic1 is offline
Member
 
Join Date: Feb 2011
Posts: 295
10 yr Member
winic1 winic1 is offline
Member
 
Join Date: Feb 2011
Posts: 295
10 yr Member
Default

Quote:
Originally Posted by AnnieB3 View Post

I believe that placing tape over the lens of glasses on the side of the droopier eye can help. I have forgotten the details of that little trick, so if anyone can help Dave out, please do! A neuro-ophthalmologist can help with that for you!


Annie
Here's where I wrote out every trick I've been told and used: Eye Rest

In that post I wrote every trick my ophthalmologist has ever known for dealing with double vision and wandering eye(s) (which cause double vision when the muscles tire and one or both eyes can't stay lined up like they should). I have been dealing with double vision for over a decade now--not just up-down, not just side-by-side, but both at once, giving diagonally doubled vision, with one eye rotating as well, so the second image is not only diagonally displaced, but tilting outward as well. You have to try various things and see what works for you, and it may change over time as well.

You need an ophthalomologist who specializes in eye muscle disorders and dysfunctions, not necessarily a neuro-ophthalmologist (I've been referred out to three, two were utterly useless and the third was senile but still riding on a massive reputation from his younger years).

Oh, and Annie, I have been definitively diagnosed with MG by the ophthalmologist. And at my last visit, because in addition to all the double vision/wandering weak eye problems, I now have sigificant ptosis of my right upper lid, and severe sagging of the lower lid, affecting the whole eye itself as well, and when his technician who was recording notes during the visit asked for the diagnosis, he answered, "Poorly controlled myasthenia gravis."
But the eye doctor group is not part of the corporation that owns all the medical doctors' practices in the region, so they won't acknowledge his diagnosis, as they don't talk to outsiders.

Can't wait until I move out of state next summer.
winic1 is offline   Reply With QuoteReply With Quote
 

Tags
double, it’s, job, stops, vision


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
New member Gordw New Member Introductions 3 02-03-2013 01:05 AM
new member dadawaagin New Member Introductions 5 11-28-2012 04:08 PM
New member mommy2noah Colloid Cyst 0 11-26-2012 05:47 PM
new member Bianca New Member Introductions 7 09-20-2008 09:22 PM


All times are GMT -5. The time now is 10:40 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.