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Old 04-13-2018, 06:24 PM #1
AnnieB3 AnnieB3 is offline
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AnnieB3 AnnieB3 is offline
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Join Date: Feb 2009
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Hmm. Where did they do the EMG? Only on your legs?

Do you have any numbness or tingling in your face or hands? Has anyone checked you for a vitamin B12 deficiency? Or vitamin D? Has a doctor checked your thyroid function? A primary doctor can do those and other basic testing like a metabolic panel.

Is the leg cramp on the opposite side you sleep on or the same? Or do you sleep on your back? Some people can have leg cramps from weakness (not enough drugs while sleeping). But you might have undiagnosed sleep apnea (which weight or being in shape has nothing to do with).

I have had calf cramps. They are horribly painful. Mine are from overuse or when my MG is overall bad. But there are many causes to leg cramps.

How much magnesium do you take? Too much magnesium or potassium is not good for MG.

Since you have been an athlete, I'm sure you can understand this. Overuse of muscles can bring fatigue, cramps, spasms. When someone with MG does too much, those symptoms just happen a lot sooner than they would for an athlete running a marathon, for example. And that "fatigue" of muscles can also affect metabolism. When my MG is worse, I can have what I call "MG cold." My metabolism gets so run down that my body gets colder. Takes a very warm blanket or coat to warm up!

Pay attention to how you sit, what muscles you tense up, etc. Normal people aren't aware of how certain activities affect what muscle groups. Once someone has MG, the cause and effect relationship of activity to weakness becomes far more clear!

Don't assume the leg cramps are from MG though. You should probably see an internist to make sure there isn't something more serious (blood clot). Do you travel or sit for long periods of time? When was the last time you had an ECG?

I hope that helps! But, really, only a doctor can!

Annie
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Old 04-13-2018, 08:16 PM #2
Rechellef Rechellef is offline
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Rechellef Rechellef is offline
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Quote:
Originally Posted by AnnieB3 View Post
Hmm. Where did they do the EMG? Only on your legs?

Do you have any numbness or tingling in your face or hands? Has anyone checked you for a vitamin B12 deficiency? Or vitamin D? Has a doctor checked your thyroid function? A primary doctor can do those and other basic testing like a metabolic panel.

Is the leg cramp on the opposite side you sleep on or the same? Or do you sleep on your back? Some people can have leg cramps from weakness (not enough drugs while sleeping). But you might have undiagnosed sleep apnea (which weight or being in shape has nothing to do with).

I have had calf cramps. They are horribly painful. Mine are from overuse or when my MG is overall bad. But there are many causes to leg cramps.

How much magnesium do you take? Too much magnesium or potassium is not good for MG.

Since you have been an athlete, I'm sure you can understand this. Overuse of muscles can bring fatigue, cramps, spasms. When someone with MG does too much, those symptoms just happen a lot sooner than they would for an athlete running a marathon, for example. And that "fatigue" of muscles can also affect metabolism. When my MG is worse, I can have what I call "MG cold." My metabolism gets so run down that my body gets colder. Takes a very warm blanket or coat to warm up!

Pay attention to how you sit, what muscles you tense up, etc. Normal people aren't aware of how certain activities affect what muscle groups. Once someone has MG, the cause and effect relationship of activity to weakness becomes far more clear!

Don't assume the leg cramps are from MG though. You should probably see an internist to make sure there isn't something more serious (blood clot). Do you travel or sit for long periods of time? When was the last time you had an ECG?

I hope that helps! But, really, only a doctor can!

Annie
Yes, all of those tests were run (B12, Vitamin D, Copper, thyroid, etc.) very recently in fact and were all normal except my B6 and since I have neuropathy in both legs, I had to stop taking a particular supplement.

No, I do not sit for long periods of time (I have a hard time letting myself sit sill in fact) and my last ECG was about 3 years ago for a benign condition called PVC's (which have since gone away).

I do notice that the spasms and cramps are much worse when I've had coach a few more gymnastics classes than usual (such as yesterday), so perhaps it is from muscle fatigue. There have been some classes where I wasn't sure I could finish coaching due to weakness and fatigue before I even knew what MG was and it was on those nights that my legs would spasm and cramp worse than other.
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