Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


advertisement
 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 04-19-2018, 11:02 AM #1
Stellatum Stellatum is offline
Senior Member
 
Join Date: Feb 2010
Posts: 1,215
10 yr Member
Stellatum Stellatum is offline
Senior Member
 
Join Date: Feb 2010
Posts: 1,215
10 yr Member
Default getting tested for the LRP4 antibody

I have had MG since 2009. I have been tested for the AChR and MuSK antibodies several times each (and also LEMS), always negative. I was diagnosed with MG the third time I had a SFEMG (the first two came back borderline).

I have also had no significant response to Imuran, IVIg, or Mestinon.

My neurologist is going to test me tomorrow for the LRP4 antibody. He was surprised when I told him I had read that there's now a commercially available test, but he believed me, and found it.

I have tested negative sooo many times... I will be disappointed if I get another negative test. We are trying to build a case to the insurance company to try Rituxan. But how cool would that be if it's positive!

Abby
Stellatum is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
AnnieB3 (04-29-2018)
 

Tags
antibody, negative, test, tested, times


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
antibodies against the LRP4 protein have been added to the causes of MG southblues Myasthenia Gravis 6 03-16-2014 08:28 PM
antibody to LRP4 (for double-seronegative MGers) Stellatum Myasthenia Gravis 2 11-12-2013 05:38 PM
Lrp4 antibodies and 3,4-dap Stellatum Myasthenia Gravis 7 06-15-2013 03:15 PM
A new antibody? jana Myasthenia Gravis 3 05-20-2012 11:25 AM
New antibody info Brennan068 Myasthenia Gravis 4 02-12-2012 08:06 PM


All times are GMT -5. The time now is 08:24 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.