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-   Myasthenia Gravis (https://www.neurotalk.org/myasthenia-gravis/)
-   -   new member confused (https://www.neurotalk.org/myasthenia-gravis/251483-confused.html)

azwild 05-17-2018 08:36 PM

pulmonologist
 
yes i have both a pulmonologist and infectious disease pulmonologist the infectious guy is affiliated with st josephs which barrow is a part of the campus

Nac Mac Feegle 05-17-2018 11:55 PM

I can recommend Barrow, they diagnosed and treated me
 
I'm in the Phoenix Metro area, too.

I was referred to the (Gregory W.) Fulton Center for Neuromuscular Diseases by a Otolaryngologist that recognized the symptoms I was having.

They started me on Mestinon, and it started working, but I took a bit of a downturn after a few days, and they decided to do Plasmapharesis on me. I went in to Barrow in a wheelchair, and walked out 6 days later.

Barrow is considered one of the top Neurological institutes in the country, so you'll be in good hands.

There is a chapter of the Myasthenia Gravis Foundation of America (MGFA) that meets in Tucson and Phoenix. They're inactive over the summer, but there are people that you can call for info. The website is below.

Arizona Chapter of the Myasthenia Gravis Foundation

Good luck.

azwild 05-18-2018 11:02 AM

thanks for the link
 
my wife works in that building in scottsdale, not sure where they are located


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