Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


advertisement
Reply
 
Thread Tools Display Modes
Old 05-29-2018, 04:50 AM #1
MGFIGHTER MGFIGHTER is offline
Newly Joined
 
Join Date: May 2018
Posts: 1
5 yr Member
MGFIGHTER MGFIGHTER is offline
Newly Joined
 
Join Date: May 2018
Posts: 1
5 yr Member
Default Tapering off prednisone 20 mg

Hello everyone!

I was diagnosed with MG in December 2017, went into full blown crisis on Jan 2018. That led to a hospital stay of two months (25 days in ICU). Since then, I have been on a regiment of Mestinon 60 mg, and Prednisone 20 mg.

I am concerned about the serious cramping I am feeling on my arms and legs. My neurologist has told me that cramps are due to intake of Prednisone.

Has anyone had any positive response to the use of Astragalus to gradually substitute Prednisone 20 mg?

Thank you!
MGFIGHTER
MGFIGHTER is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
AnnieB3 (06-02-2018)

advertisement
Old 06-02-2018, 12:45 AM #2
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
Smile

I would suggest seeing a primary doctor to make sure that your electrolytes aren't out of balance.

Do you drink enough water during the day?

Cramping muscles can be from increased MG weakness as well.

I would not use astragalus as a way to wean off of Pred! That herb can reduce the effectiveness of immune suppressant drugs, including steroids.

First find out what is going on with your body, by having some basic tests like a chem panel and CBC done. Then allow your docs to figure out a good course of action. Experimenting on the body can be quite dangerous. Simply because an herb is "natural" does not mean the effects are benign!

I can appreciate wanting to find alternative medicine for MG. But there has not been sufficient research on anything for us.

I hope you can find a safe way to taper off of Pred (small doses at a time like 1 mg.).

Annie
AnnieB3 is offline   Reply With QuoteReply With Quote
Reply

Tags
concerned, feeling, prednisone, serious, told

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
tapering of Amitriptyline Synnove Medications & Treatments 3 03-04-2015 09:08 AM
Tapering off geodon bizi Bipolar Disorder 18 10-02-2013 04:59 AM
prednisone tapering questions huntress Myasthenia Gravis 7 06-06-2013 12:29 PM
tapering off neurontin hannah1234 Reflex Sympathetic Dystrophy (RSD and CRPS) 6 04-26-2011 11:22 PM
New Here - Just had MVD, tapering off Tegretol jjlsongbird Trigeminal Neuralgia 57 01-29-2010 10:10 AM


All times are GMT -5. The time now is 04:08 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.