Hello everyone! So happy to be able to write to you all with this question!

I have MG, was diagnosed 2 years ago. My first year I did a lot of Prednisone, immunosuppressants, together with mestinon. After a year, my body weakness was basically gone but my eyes never became fine.

I have the classic symptoms of mg in my eyes, droopy eyelids, double vision and hard to focus. The eyes have always been the worst for me, it is like torture to use them some periods.

The last year ive been on a low dose of Prednisone and Mestinon. I did a month of higher dose Prednisone about 4-5 months ago. This made the eyes a lot better, as it has done before, until a few weeks ago when it started to bother me again.

My quesion to you is:
If you have been on Prednisone, gotten good effect, and tapered off to a lower dose, how long do you have effect that good effect? How long does it take until you have to increase the dose again for a period of time?

Im having a hard time with Prednisone and Id rather stay on these lower doses. This is why im doing research of how other people handle this.

I am forever grateful for any reply regarding this issue.

Kind regards from Europe <3