Dear AnnieB3,

I'm sorry you hemorrhaged so badly after surgery, and needed a transfusion. I hope it helped though. When I had a transfusion in the fall of this year, it really made a big difference right away. Like you, I got two units.

I have been talking with my doctors, and I'll keep talking with them. I have been trying very hard to advocate for myself. Even yesterday, I asked my doctor if the combination of anemia and myasthenia gravis could be making things worse, even though technically I'm not at a severe level of anemia. I asked if I could be eligible for other treatment. This was my neurologist, and she said anemia wasn't really her area, but the answer was no, I am not a candidate for a transfusion or other treatment. All of the doctors are saying so, including the hematologist. I am on Aranesp injections, which are supposed to help my bone marrow make more red blood cells, so I hope things will start getting better soon.

Thanks,
Erin