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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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06-20-2018, 11:49 PM | #1 | ||
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New Member
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hello
I hope everyone doing well with MG. I am Qamar, biomedical engineer and MG patient,** I diagnosed with MG 15 years ago, I was 9 years old. first, if you had MG recently plz be strong, usually MG get better overtime( overyears) anyway here are some tips for u to improve your life quality: 1- DETOX tea, GREEN TEA at the morning 2- exercise - I know you are not strong enough to work out so drink pre-work out it will boost ur energy up ( it is safe) 3- take DIM supplement, it is good because it will reduce the estrogen level 4- reduce the fat from your food 5- DO NOT EAT nuts (pistachio, sunflower seeds...) ( I LOVE IT ). 6- be HAPPY. if you have any questions about anything. feel free to ask Last edited by Chemar; 06-21-2018 at 09:26 AM. Reason: NT Guidelines/Please see PM |
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06-21-2018, 11:26 AM | #2 | ||
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Grand Magnate
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Hello, Eng. Qamar. I'm afraid I'm going to be a bit contrary today.
Green tea does the same thing that Mestinon does—inhibits acetylcholinesterase. Caution is necessary, as too much (in combination with Mestinon or other CIs) can cause a cholinergic crisis. Caffeine does the same thing. Some people can exercise. Everyone who has MG is different in what they can or can't do. There are many other tips for exercise, such as having a fan blowing to stay cool, doing more fluid exercise such as swimming, etc. People could just eat good greens (or juice them), which is fresher than taking a DIM tablet. Good fat is something that the body needs, such as olive oil, lean proteins, etc. Our muscles absolutely need good proteins (and fats) to work well. Organic nuts are perfectly wonderful for the body, unless one is allergic to them. There are "better" nuts, such as walnuts (good omegas). I can't argue with being happy. But happiness doesn't last. A good sense of self, of accomplishment, community, and kindness last longer. There is no scientific proof that MG improves with age. Hormones do affect MG, and may fluctuate the severity over the years. But there are many older people whose MG is far worse. Again, there are no algorithms that fit every patient. Everyone with MG is different. I'm glad you've found what will work for you. Annie |
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06-26-2018, 11:45 AM | #3 | ||
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Newly Joined
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For my Wife the best thing she could do to minimize her gravis, was to get plenty of rest. It really helped to get 8 hours of sheep every day. Probably the main thing that brought on the MG was stress.
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