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Hot Weather

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Old 07-09-2018, 12:05 PM   #1
nikos
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Join Date: Sep 2014
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Default Hot Weather

Do any of you have problems with really hot weather? I get really tired after very little activity (even though I am mostly in air conditioning). Just wondering.
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AnnieB3 (07-09-2018), ErinBear (08-07-2018)
Old 07-09-2018, 06:26 PM   #2
AnnieB3
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Hey, Nikos. Avoid heat/hot weather like the plague! That can make MG exponentially worse.

If you do become overheated, cool down right away. Put a fan in front of you, take a cold shower, whatever you need to do to cool the entire body down.

What is really bad about being too hot is that it's hard to tell how much weaker you've become. People tend to have a MG crisis in the summer months. So try to cool down, and nap, if you get too hot.

Annie

Last edited by AnnieB3; 07-09-2018 at 06:46 PM.
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Old 08-06-2018, 08:17 PM   #3
LeeMac
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I'm also new here and to having MG. In just the last few days I have had several encounters were heat quickly brought on weakness. Fortunately recovery was not terribly long either once I got cooled off.

I wonder, have others found a temperature at which they begin to notice effects? I'm trying to pay attention. I don't quite have a number but it seems to start well before "hot".

In in central Florida we have plenty of hot days, low 90s with heat index numbers in the low 100s. One thing I'm working on now is how to keep the parked car cooler.
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Old 08-09-2018, 08:27 PM   #4
LeeMac
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Maybe this is old news but for me it helps to see measured data. This is all so new I keep trying to convince myself it must be partly imagination. I guess not.

I found this in The Lancet, Temperature and Weather Correlates of Myasthenic Fatigue. I was able to get the full article from the college library. Here's a few tidbits:
  • A 5 deg C increase in temp caused RNS testing to go from normal results to a 44% drop
  • "Changes by only 2 degrees C influence neuromuscular transmission to a significant extent"

I'm really astounded at the impact of temperature. In fact I'm learning that being just a little colder than what I usually consider comfortable is a huge help.
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