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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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07-17-2018, 12:26 PM | #1 | ||
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Junior Member
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I am probably going to have surgery for a prolapse problem. Has anyone had experience with surgery and having MG. Just wondering what I should expect.
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07-17-2018, 12:54 PM | #2 | ||
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Sorry you have to have surgery. While I haven't had that particular surgery, I have had 4 long surgeries in the last couple of years due to cancer. Five hours, 2 hours, 2.5 hours and 2 hours. The first two were done while MG was not at all stable and I did fine. The resting after the surgeries kept the MG from going nuts. The last 2 were done after I was stable on Rituxan, and I recovered very quickly.
It's best to have the MG under as much control as you can before heading to surgery. I've found all the anesthesia docs to be well aware of MG and how to handle it and have never had any issues. I hope you have a very successful surgery and recovery with no mischief out of the MG! |
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"Thanks for this!" says: | ErinBear (07-18-2018) |
07-18-2018, 01:48 PM | #3 | ||
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Yes, I've had surgeries since I had MG. Make sure the surgeon, anaesthesiologist, and nurses know that you have MG when you check in for surgery. They will adjust your medications for surgery, and should monitor you when you get out of surgery, also, to make sure you are feeling well. Try to take good care of yourself in the days leading up to surgery, as well as taking good care of yourself afterwards. Sometimes general anaesthesia can cause some difficulty for myasthenia gravis patients, so let them know if you are feeling any weakness or having trouble breathing, etc. However, anaesthesiologists and doctors have gotten much more aware of the problems related to MG, in my experience, and are being as careful as they can with anesthetics. Hopefully you will get through the surgery well and you'll be feeling better soon. Sending lots of good wishes!
Take care, Erin |
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