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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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12-06-2018, 06:36 PM | #1 | ||
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My first symptom of Ocular MG 5/13/18 I was tested positive in August 2018. They originally thought i had a stroke. After my diagnosis, CT scans showed no abnormalities on my thymus gland. I was then prescribed Mestinon for the symptoms and finally referred to University of Kansas medical center. (They have specialized & studied MG.). There I was further Prescribed prednisone & referred for a Thymectomy. Although i am only a week out of surgery, I am feeling better & feel As though this was my best option for remission. Good luck ! |
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12-08-2018, 01:14 PM | #2 | ||
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12-08-2018, 03:36 PM | #3 | ||
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was the best option for me! |
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12-09-2018, 09:54 AM | #4 | ||
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Awesome information! As a retired surgical nurse, I would not want to go through a thymectomy unless absolutely necessary; but I'm going to look this up!
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12-09-2018, 07:15 PM | #5 | ||
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12-18-2018, 06:50 AM | #6 | ||
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Post opt after my Thymectomy 3 weeks out Released by my surgeon and I may get to get off My medication’s My muscle weakness, vision symptoms have improved!! Praying for full remission 🙏 Kansas University Medical Center is awesome !! Praise God 🙏 |
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12-09-2019, 10:49 AM | #7 | ||
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Newly Joined
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Does anyone know if there is an age limit for thymectomy surgery?
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