I have been taking Soliris for about 5 months. For me, it's magic. After my 1st two doses I felt like I was in 95% remission. So far there's no sign of it reducing the positive effects. Last summer I was fully functional on even the hottest days. It was a good feeling to not have to think about staying cool all the time.

I receive 1200mg every two weeks. There's a little sensation after infusion, but it's mild. Currently, you must be AcHr positive for the drug to work.

The worst part is the cost. If I didn't have great insurance I would have to pay $400,00 per year. My Neuro says they are working on some new drugs that will cost less.

I hope you are all doing well. I am almost forgetting about MG on many days. It's a good drug. Be careful to get all 'i's' dotted and 't's' crossed with your insurance company. I had to be my own advocate getting my Doc, my insurance company and the drug company (Alexion) on board.

Good luck. Be your advocate.
Regards